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EpilepsyExplained.com
Followers of @epilepsyexplained.com
Shared Umbrellas
Registered:15 Nov 2024 17:34
Supporting those proving extra care for themselves or a loved one. It can be isolating and often extremely challenging, now more than ever in these times of uncertain funding. You are not alone. Let’s help each other. #Disability #ChronicIllness #CareGiver
Nicole Cosette Werner
Registered:15 Jun 2024 16:16
Open Research and Public Engagement Roadmap
Registered:20 Mar 2025 20:50
Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
Retention Project
Registered:17 Oct 2025 08:15
RETENTION is a H2020 funded project conceived to support clinical decision making, clinical monitoring and data-driven interventions for heart failure patients in need of ventricular assist devices (VAD) and patients who received a heart transplant.
Anna Hurley
Registered:13 Nov 2024 18:50
Paediatric Neuropsychologist at Great Ormond Street Hospital & private practice 🧠 Honorary Senior Research Fellow @UCL
Dr. Helga D. Ísfold Sigurðardóttir
Registered:10 Aug 2023 12:56
Game researcher, PhD. Posts in English, Icelandic, Norwegian. She/her 🦓🇧🇻🇮🇸
Ruben Crouten
Registered:10 Feb 2025 19:00
John Salts
Registered:17 Nov 2024 02:31
One crisis after another.
Canadian Epilepsy Alliance
Registered:17 Dec 2025 17:57
The Canadian Epilepsy Alliance is a national network of 26 community-based organizations supporting 1 in 100 Canadians living with epilepsy. We advance education, advocacy, awareness, and inclusive services to improve quality of life nationwide.
Epilepsy South Central Ontario
Registered:17 Dec 2025 17:31
Epilepsy South Central Ontario is a nonprofit empowering individuals and families affected by epilepsy through education, advocacy, and compassionate support. We build understanding, independence, and community through programs for all ages.
GirlRebuilt 🇨🇦🇧🇧
Registered:16 Nov 2024 23:31
Mom to humans & cats. DV survivor.
Photographer. Writer. Music Junkie. Goth. Pain warrior; numerous disabling chronic illnesses🥄. 🏳️🌈 ally. Join me in my amusement park of misadventures... it's dark in here.
The Zebra Alliance Community
Registered:22 Jan 2025 16:47
The Zebra Alliance represents a beacon of hope and solidarity for navigating the challenging waters of Ehlers Danlos Syndrome, Rare Diseases, and Chronic Illness 🩵🦓🩵
Community • Education • Resources • Advocacy & Allies
https://linktr.ee/thezebraalli...
andrew19834.bsky.social
Registered:10 Dec 2024 20:08
Brain Ablaze
Registered:22 Nov 2024 23:52
As people with Epilepsy, we support anyone dealing with seizures.
Alexander Symon-Allen
Registered:10 Dec 2024 20:04
NHS Clinical Scientist in Genomics 🧬
Epilepsy 🟣 Meningiomas 🧠 Inherited Cancers 🦀
Emily Pegg
Registered:2 Feb 2025 21:18
Neurologist. Epilepsy and hormones, health inequalities, obstetric neurology, brain network analysis
https://research.manchester.ac...
The North American AED Pregnancy Registry
Registered:19 Nov 2025 18:30
Empowering Pregnant Women with Information About Anticonvulsants through Research
Paula
Registered:20 Oct 2024 00:52
@encephalitisint & @ocdaction supporter/advocate
epil volunteer.
an OCD
Advocate
Advocate
OCDAdvocate &
I support
@encephalitisint.bsk..
Chris Churchill
Registered:25 Sep 2023 17:46
Settler. Survivor. Epilepsy and CPTSD (he/him)
Adjunct historian: Malcolm Bowie Prize (2013); 2x Joseph Kruson Teaching Award (2014, 2017); CAFA Distinguished Teaching Award for a Precarious Academic (2023)
IctalGroup Research Network
Registered:22 Dec 2023 18:36
ctown9516.bsky.social
Registered:28 Dec 2024 01:16
Torie Robinson
Registered:6 Sep 2024 02:01
🎬 Epilepsy Sparks Insights Podcast Host & YouTuber 🧠🧬 | International Speaker | PPI Lead | #Epilepsy & #MentalHealth Research fiend | All views my own
KearneyLab
Registered:25 Jul 2023 03:54
Neuroscience | Genetics | Pharmacology | Epilepsy | Neurodevelopmental Disorders | Targeted therapeutics | Northwestern University, Chicago | Opinions are my own 🧪👩🔬🧠🧬💊
FutureNeuro Centre
Registered:10 Feb 2025 17:02
FutureNeuro is the Research Ireland Centre for Translational Brain Science, based in RCSI University of Medicine and Health Sciences. Our vision is to change the patient journey for people affected by brain conditions.
Melissa McCarron
Registered:9 Sep 2025 17:44
ThePlaguesRUS
Registered:15 Nov 2024 01:04
Covering all news on wars, politics, climate change, science, travelling, photography and more.
🌌 🌋 🌊 🦠 📚 🔫📸🧳
Jennifed
Registered:19 Oct 2023 20:15
Cloud groupie. Weather fan. Wildlife observer📸
Dogs! Living in The Land on the Fresh Coast. She/her.
I will swear on occasion. Auntifa logistician & procurement specialist🫡🖖🏼
JdS
Registered:15 Nov 2024 02:15
Public defender turned civil rights lawyer.
the-other-dog.bsky.social
Registered:19 Dec 2024 16:40
Dr. Amy L. Brewster, PhD
Registered:22 Nov 2024 00:45
Scientist (epilepsy research) and educator. When I’m not in the lab or classroom, I’m out on the trails with my golden sidekick, Beto, researching new adventures.
Epilepsy Sparks
Registered:16 Nov 2024 12:18
Educating re the #epilepsies 🧠⚡🔬🧬! Check out our podcast & website! We bridge the comms gaps between clinicians, academics, & people with an epilepsy!
American Epilepsy Society
Registered:18 Nov 2024 19:55
Official account for American Epilepsy Society. We support research + education for professionals working towards a world without epilepsy. RPs ≠ endorsements.