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Bluesky Followers
Huntington's Disease Association
Followers of @hda.org.uk
EHDN News
Registered:26 Nov 2024 13:24
European Huntington's Disease Network newsletter. Editor: Catherine Deeprose. Views are my own and RTs are not endorsements. Email: newsletter@ehdn.org
Natasha Sneddon
Registered:21 Feb 2026 11:38
PhD student โ๏ธ | Sleep and Huntingtonโs disease ๐ด๐ง
In my spare time, Iโm probably training for a marathon ๐๐ปโโ๏ธ
๐ Woolcock Institute of Medical Research at Macquarie University ๐
Bhairavi
Registered:26 Jan 2025 15:33
Research Fellow at Mass General Hospital.
#Huntington #disease
๐๐๐ฌ๐งฌ
HD Reach
Registered:8 Jan 2026 18:08
We are a nonprofit organization founded in North Carolina that is dedicated to providing access to healthcare, education, and social assistance for those affected by Huntingtonโs disease.
https://linktr.ee/hdreach
Dzimuma zvaigznฤซte
Registered:28 Feb 2024 10:54
He/him, pro Klimaschutz, #fckafd boycott #crazyelon
Paul Sandars๐ด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ
Registered:18 Aug 2024 15:11
Born in England, but would much rather be a Celt. I only seek Celtic followers.Lives in Neath Port Talbot. Survivor of a brain haemorrhage. Plaid Cymru,was Labour cllr.
I shall always love my late partner Nikki Thomson and our late daughter Eilidh Thomson.
SocialHDLancos
Registered:13 Feb 2025 10:54
Page ran by the EHDN Lancos, working on the Enroll-HD study! Views are my own and RTs are not endorsements.
FundraizingHero
Registered:4 Sep 2025 09:35
All-in-one Fundraising Hub to scale supporter-led fundraising, cut admin, and enhance supporter experience.
Open Research and Public Engagement Roadmap
Registered:20 Mar 2025 20:50
Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
Rupert Rivett
Registered:11 Nov 2024 20:18
๐ธ Photographer | capturing life's candid moments with my camera ๐ธ
๐ https://rupertrivett.photoshel... ๐
#RealStreetPhotography #Photojournalism|
Skilled in unobtrusive, authentic #storytelling
๐ฃNEW SUBSTACK ๐
๐๐ธ๐๐ธ๐๐ธ๐๐ธ
https://rupephoto.substack.com...
Inverna Therapeutics
Registered:20 Dec 2024 14:57
Next-generation RNA splicing modulation platform dedicated to transforming patient outcomes in severe genetic diseases #RNAtherapeutics #RNAsplicingmodulation #Pseudoexon #Parkinsons #Huntingtons
NIHR ARC Wessex
Registered:2 Sep 2024 13:23
NIHR Applied Research Collaboration Wessex 1 of 15 ARCs supporting applied health & care research in England https://linktr.ee/ARCWessex
#Lifechangingresearchfundedbythepublic
Sue Wright
Registered:19 Nov 2024 00:50
Ricky Kumar T
Registered:12 Feb 2025 02:18
Creative design, podcaster, community connecter, red+green socialist, runner, PTSD awareness, NUFC fan, classic introvert! ๐ฐ
Newcastle Upon Tyne, UK
Scientific Today
Registered:16 May 2025 01:09
Scientific content aggregator with custom content feeds. Science news, jobs, events and more. Sign up at https://www.scientific.today.
CAST - Centre for the Acceleration of Social Technology
Registered:26 Sep 2024 10:08
UK charity. Providing free courses, resources and networking opportunities to help charities and social impact organisations harness the full power of digital and AI. Also working with funders to create an environment of support. See www.wearecast.org.uk.
Claire Farrington-Douglas
Registered:20 Nov 2024 19:04
Director of services (Clinical lead) Headway East London, speech and language therapist, supervisor and trainer.
Interested in aphasia, ICAPs, CCD, PPA, communication partner training and group interventions.
http://clairefarringtondouglas...
Peter Just
Registered:22 Aug 2024 14:20
Views here my own.
Work: external affairs & influencing at the Royal College of Speech and Language Therapists.
Research: โช@expremiers.bsky.socialโฌ
HDBuzz
Registered:6 Feb 2025 15:50
Huntingtonโs disease research news. In plain language. Written by scientists. hdbuzz.net
Editors - @sjh508 @rjharding
Emily Adams
Registered:26 Feb 2025 09:22
Stakeholder Engagement and Impact Manager at DeNPRU Exeter
Views are own.
Poul Sรธrensen
Registered:19 Nov 2024 07:37
Danish biotech start-up builder living in Paris | RNA Tx & immunotherapy aficionado | Family barista | Kongeblรฅ & Gooner
Molly Gracey
Registered:7 Jul 2025 08:48
๐ง MediPaCe - Research & Operations Executive
๐ HDBuzz - Staff Writer: https://tinyurl.com/hdbuzz-mol...
Atul Kumar
Registered:29 Jun 2025 00:44
๐ธ Charity Fundraising Consultant
๐ฝ Author of Alien Places
๐ Second book on the way
๐ Founder of the Environmental Thinking Institute (ETI)
๐ฌ Actor: Neighbours, King Arthur
๐ Bournemouth
๐ก www.atulsearth.co.uk/fundraisi...
E.J. Garner
Registered:28 Jun 2025 14:11
Love my family; beautiful granddaughters, eternal love for Scotty & Matthew. Favorite foods ๐ฎ ๐ฑ๐๐ธ๐ฅ๐พ. Oh yeah & LOVE my hubby too!
Lizzie Furr
Registered:29 May 2025 13:49
Trainee Clinical Psychologist at Lancaster University
Looking for participants for my doctoral thesis on โThe Journeys of Non-Affected Parents within Families with Huntingtonโs diseaseโ
Contact me for more info: l.furr@lancaster.ac.uk
The Gradel Institute of Charity
Registered:16 May 2025 10:04
Our mission: to advance understanding of the many ways charities address public needs and amplify the effectiveness of the work of nonprofit organisations. Part of New College, University of Oxford.
NIHR PRU in Dementia and Neurodegeneration Exeter
Registered:22 Jan 2025 11:51
This NIHR Policy Research Unit is part of @nihr.bsky.social and hosted by @exeter.ac.uk in collaboration with Bradford, LSE, Newcastle, Ulster & UNSW. Views own
HD Reach Game Over HD
Registered:7 May 2025 16:49
501 (c3) Nonprofit streaming video games and spreading awareness for Huntington's disease.
Socials, Streams, Join the fun!
https://linktr.ee/HDReachGameo...
Anne B Young MD/PhD
Registered:12 Mar 2025 14:02
Iโm a retired neurologist and neuroscientist specializing in Movement Disorders especially Huntingtonโs Disease. I chaired the Neurology Department at Massachusetts General Hospital for 21 years. I have written a memoir of my journey and adventures.
Jen L, PhD
Registered:17 Feb 2025 08:20
Executive Editor/Team Lead Open Access Science & Medicine Journals Sage Publishing
Opinions = mine
http://linkedin.com/in/jlovick...
#oncology #cancerresearch #medicine #biology #cardiology #neurology #microbiology #publichealth #healthcare
Westminster City Council
Registered:24 Nov 2024 21:34
News and events from Westminster City Council.
Monitored Mon-Fri, 9am-5pm. Out of hours call 020 7641 6000 or visit http://westminster.gov.uk/repo...
Skotte Research Group
Registered:27 Jan 2025 12:23
Protein biomarker discovery in biofluids | neurodegenerative disorders | Huntingtonโs disease
Dept. Drug Design and Pharmacology, UCPH ๐ฉ๐ฐ
https://drug.ku.dk/research-se...
Erika B. Villanueva
Registered:23 Jan 2025 20:05
๐ต๐ญ๐จ๐ฆ๐ฉ๐ฐ Postdoc @SkotteGroup | UCPH-BRIDGE alum | in vivo modelling | neurodegeneration | Huntingtonโs disease | Parkinsonโs disease
Patrick van der Wel
Registered:5 Oct 2023 15:47
Solid-state NMR, Zernike Institute, university of Groningen. Posts = personal. Spectroscopy, biochemistry, structural biology, amyloid &
condensates, Huntington disease, membrane biophysics, biomaterials etc
hdsa-mari.bsky.social
Registered:13 Mar 2025 04:17
Leeds Involving People
Registered:13 Mar 2025 13:31
We give a voice to residents and support the improvement of health, social care and community services.
We are an independent, user-led organisation with 30 years of experience in connecting service users, carers and the public with service redesign.
Phelim Kelly, London
Registered:24 Nov 2023 19:39
๐๐๐ GLOBAL travel writer / news curator
๐ง๐ท๐ธ BLOG linktr.ee/PhelimKellyCom
๐: ๐๏ธ๐ฅพ CITY walks ๐ช๐บ HowToEnjoy.eu
๐๐ป๐ฌ PUBLICIST-producer-actor imdb.com/name/nm5117722/
๐ฃ๏ธ: ๐ช๐ธ ๐ซ๐ท ๐ญ๐บ ๐ฎ๐น TEFL
๐โโ๏ธ LONDON pack bsky.app/starter-pack/phelimkellycom.bsky.social/3lr44hozfo225
Joan Steffan
Registered:27 Feb 2025 21:36
It's all about autophagy
Sarah R Langley
Registered:6 Sep 2023 12:30
Computational biologist lecturer @ Cardiff University - interested in integrating omics to understand disease! All views my own
Faculty of Public Health
Registered:12 Dec 2024 14:21
The UK's professional membership body for #publichealth. We work with our members to protect and improve health for all. www.fph.org.uk
Labrador Retriever ๐บ๐ธ๐จ๐ฆ
Registered:21 Nov 2024 15:03
๐พ Friendly, loyal, and full of energy! ๐
๐พ Fetching pro | ๐ถ Adventure buddy | ๐ฆด Treat enthusiast
Always ready for cuddles and making new friends! ๐ถ
Merve Heinzer-Avar
Registered:20 Nov 2024 01:34
SNSF Postdoctoral Fellow | Pasca Lab at Stanford neurodegeneration and development, organoids, high-throughput screening
Adel Boudi
Registered:27 Dec 2024 20:05
Neuroscientist @ MassGeneral Hospital/Harvard Medical School
Amyotrophic Lateral Sclerosis | Huntington's Disease
CharityComms
Registered:21 Nov 2024 15:30
CharityComms is the membership network for communications professionals working in and with UK charities. Find out more about us and our membership at www.charitycomms.org.uk
Mahmoud Pouladi
Registered:9 Sep 2023 12:02
Associate Professor, BCCHRI, University of British Columbia :: Neurogenetics :: NDDs :: Disease Modelling :: Drug Discovery :: iPSCs
Blake y
Registered:21 Nov 2024 16:32
How tf did this happen again?
Gay nerd. Gaymer. Politically active. Pissed off but keeping on keeping on. ๐ณ๏ธโ๐โ๏ธ๐ป๐ฎ๐ท๐