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ME Association
Follows by @meassociation.org.uk
Institute of Genetics and Cancer
Registered:14 Nov 2024 12:43
Follow date:6 Sep 2025 11:41
Our mission is to improve the lives of people living with genetic disease and cancer through research.
Miles W. Griffis
Registered:4 Jul 2023 00:53
Follow date:9 Aug 2025 11:21
Co-founder/editor @TheSickTimes.org Columnist @HighCountryNews.org miles@thesicktimes.org #LongCOVID
Margaret O’Hara
Registered:15 Oct 2024 18:01
Follow date:4 Aug 2025 08:24
Patient Advocate in #LongCovid and #HyperemesisGravidarum Patient Involvement in Research in #NHS
Heike
Registered:31 Aug 2023 21:09
Follow date:29 Jul 2025 01:57
One of #MillionsMissing since 2002 #MEcfs Diagnose 2021 🐦 @will_ins_Gruene
Nic Wilson
Registered:25 Sep 2023 18:15
Follow date:27 Jul 2025 09:28
Author, Editor, Guardian Country Diarist, BBC Gardeners' World Mag. Patron #JohnClare Countryside Project, Fellow British Naturalists' Assoc. MA PGCE. Rep: Cathryn Summerhayes LAND BENEATH THE WAVES: https://shorturl.at/LOt7x linktr.ee/nicwilsonauthor
msmarquartpoetry.bsky.social
Registered:1 Mar 2025 08:50
Follow date:19 Jul 2025 07:15
The Sick Times verified
Registered:22 Sep 2023 23:37
Follow date:19 Jul 2025 07:15
A nonprofit news site chronicling the #LongCOVID crisis. Founded by journalists @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social Website: thesicktimes.org Newsletter: thesicktimes.org/newsletter Donate: the-sick-times.fundjournalism.org
Eileen Parkes
Registered:31 Aug 2023 11:12
Follow date:19 Jul 2025 05:53
Assoc Prof Oxford MD PhD. Oncology, early phase trials, tumour microenvironment #womenInSTEM #immunology
devonkevin123.bsky.social
Registered:15 Nov 2024 15:19
Follow date:19 Jul 2025 05:22
Hannah Buttle
Registered:15 Nov 2024 11:45
Follow date:17 Jul 2025 16:28
freelance journalist
Clare M
Registered:16 Aug 2024 11:57
Follow date:20 Jun 2025 08:41
Consultant Anaesthetist, cyclist, sports goth, learning Spanish, recovery from Long Covid took 18 months. Boycott Teva!
Sharon Jameson
Registered:16 Nov 2024 00:18
Follow date:20 Jun 2025 08:41
A northern lass at heart but calls New Zealand home.Retired educationalist. Opinionated. Won't let ME/CFS define me. Politics and Arts are my thing!
Dan Herbert
Registered:3 Jul 2023 05:12
Follow date:20 Jun 2025 08:41
Me? Prehistory. Normans. Recently Vikings. New Model Army. Asterix. Old Gods. Arsenal. Corinthian Casuals. University Library Buildings Development Manager. Neurodivergent. Cursed by MECFS. #MDANT
Something Chronic
Registered:1 Dec 2024 21:09
Follow date:20 Jun 2025 08:40
Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
Supporting Healthcare Heroes UK (SHH-UK)
Registered:16 Nov 2024 12:33
Follow date:16 May 2025 03:28
💙UK Registered Charity: 1205685 💙Long COVID doesn’t stop the care - neither do we. 💙Join our 2025 Campaign: #SafeAir4All
Foysol Choudhury MBE MSP verified
Registered:13 Nov 2024 15:52
Follow date:15 May 2025 17:57
Member of the Scottish Parliament| Equality Campaigner | Dad | Edinburgh | Scotland 🌎 www.foysolchoudhury.co.uk
Emma Lewell MP verified
Registered:14 Jan 2025 13:51
Follow date:15 May 2025 17:40
Labour MP for South Shields🌹 Email: emma.lewell.mp@parliament.uk Phone (Constituency): 0191 427 1240 lewellemp.com
Rachel Gilmour, MP for Tiverton and Minehead verified
Registered:19 Nov 2024 07:55
Follow date:15 May 2025 17:40
Published and promoted by David Wulff on behalf of Rachel Gilmour (Liberal Democrats) both at 8-9 Mountbatten Road, Tiverton, EX16 6SW. Hosted by Bluesky. rachel.gilmour.mp@parliament.uk
Ed Davey verified
Registered:8 Jan 2025 11:57
Follow date:12 May 2025 11:22
Leader of @LibDems.org.uk, husband, father, carer, and MP for Kingston & Surbiton. Promoted by Liberal Democrats, 66 Buckingham Gate, SW1E 6AU.
Tessa Munt MP 🔶 verified
Registered:15 Nov 2024 13:31
Follow date:12 May 2025 11:22
LibDem MP for Wells and Mendip Hills. Passionate to serve my home area with energy, experience, and deep care for people. tessa.munt.mp@parliament.uk
Alison Twycross RN PhD
Registered:30 Nov 2024 06:16
Follow date:17 Apr 2025 11:17
Living with Long Covid. Doing my bit to support UK healthcare workers with Long Covid. Chair of Supporting Healthcare Heroes UK. Associate Member Long Covid Support. Former Professor of Children’s Nursing. #FBLC
Fiona Hamilton
Registered:22 Oct 2024 08:08
Follow date:17 Apr 2025 11:15
Chief Reporter, The Times
Eleanor Hayward
Registered:5 Nov 2024 22:01
Follow date:17 Apr 2025 11:15
Health Editor at The Times
Jo Platt MP verified
Registered:23 Aug 2024 12:19
Follow date:6 Mar 2025 16:29
Labour & Co-operative Member of Parliament for Leigh and Atherton. This includes Golborne, Lowton, Tyldesley and Astley. For constituency queries, email Jo.platt.mp@parliament.uk
Ros Scott
Registered:19 Aug 2024 21:13
Follow date:6 Mar 2025 16:26
Lib Dem Peer. Deputy Speaker House of Lords. President National Association of Local Councils.
Long Covid Advocacy Ireland-LCAI
Registered:6 Feb 2025 03:04
Follow date:6 Feb 2025 04:22
The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ireland for all patients. https://longcovidadvocacyirela...
Walk for ME
Registered:10 Nov 2023 14:26
Follow date:6 Feb 2025 04:15
We are an awareness and fundraising event for biomedical research into ME/CFS.
Blake Forman
Registered:7 Jan 2025 15:39
Follow date:6 Feb 2025 04:10
Senior Science Writer at Technology Networks | Science communicator | Covering breaking science news | All views my own #SciComm https://www.technologynetworks...
Ben Bason
Registered:17 Jan 2025 08:07
Follow date:6 Feb 2025 04:01
Journalist at ITV Calendar. Always on the lookout for stories - email ben.bason@itv.com. Views are my own.
Maggie Boxey Writes
Registered:12 Nov 2024 00:58
Follow date:6 Feb 2025 03:47
Chronic Moxie, cohost Out of the Boxeys Podcast Author of The 3 Things, TEDx Speaker https://linktr.ee/maggieboxey 🦋living in GA with disabling ♿️ Chronic Illness🦋 #mecfs #sober 🚫🧊 🧶🎨📚👩🏻‍💻📝
Jo Weston
Registered:15 Nov 2024 12:30
Follow date:2 Feb 2025 15:22
Editor, proofreader, writer + poet. Writing services: https://linktr.ee/jowestonwrit... Residencies: Maggies Nott'm + Writers Victoria/Melbourne City of Lit. 'How not to multitask' pub by Wildpressed Books - sold out in print, ebook on Amazon. Have ME/CFS
Dom
Registered:12 Nov 2024 20:44
Follow date:2 Feb 2025 15:22
Energetically compromised #pwME and patient advocate (when able) · Research scientist by trade · Interested in how we live · Open-minded but generally sceptical https://domsalisbury.github.io
Simon McGrath
Registered:11 Oct 2023 20:21
Follow date:2 Feb 2025 15:22
I occasionally try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
Olly Mann
Registered:19 Nov 2024 15:03
Follow date:2 Feb 2025 15:21
Podcaster 🎤 Radio Host 📻Voiceover 🎧 Answer Me This!, The Modern Mann, Today In History with the Retrospectors, The Week Unwrapped https://ollymann.com
Inclusion Barnet
Registered:18 Nov 2024 10:59
Follow date:2 Feb 2025 15:21
Peer-Led, Deaf and Disabled People's Organisation based in Barnet. We believe in the power of lived experience. Visit our website: www.inclusionbarnet.org.uk
afmcguk.bsky.social
Registered:31 Jan 2025 20:58
Follow date:2 Feb 2025 15:19
Robert Saunders (aka McMullen)
Registered:11 Nov 2024 19:03
Follow date:2 Feb 2025 15:19
Author of "stranger and stranger”, letter writer, advocate and fundraiser for biomedical ME/CFS research.
Sky News verified
Registered:18 Nov 2024 18:50
Follow date:30 Jan 2025 17:30
The full story, first. Free, wherever you get your news.
Mind
Registered:15 Nov 2024 13:09
Follow date:30 Jan 2025 17:26
Fighting for mental health – for support, for respect, for you ✊
UK Parliament verified
Registered:9 Dec 2024 12:05
Follow date:30 Jan 2025 08:37
Where the House of Commons and the House of Lords scrutinise the work of the Government. Learn more about Parliament, its people and our unique heritage. linktr.ee/ukparliament
JustGiving
Registered:14 Nov 2024 11:28
Follow date:30 Jan 2025 08:31
The world’s leading platform for charity giving. We help *amazing* people like you raise more money for the causes you care about.
easyfundraising.org.uk
Registered:13 Nov 2024 10:40
Follow date:30 Jan 2025 08:30
Guts Charity UK
Registered:19 Nov 2024 16:06
Follow date:30 Jan 2025 08:22
The UK charity for the digestive system from top to bottom; the gut, liver and pancreas 💚 We’re getting to grips with guts 🤩 https://lnk.bio/GutsCharityUK
Trussell Scotland
Registered:4 Dec 2024 11:04
Follow date:29 Jan 2025 22:48
An anti-poverty charity and community of food banks working to end hunger in Scotland and across the UK 💚
Trussell
Registered:18 Nov 2024 11:33
Follow date:29 Jan 2025 22:47
An anti-poverty charity and community of food banks working to end hunger together 💚
Royal College of Anaesthetists
Registered:21 Sep 2023 08:55
Follow date:29 Jan 2025 22:01
The RCoA is the professional body responsible for the specialty of anaesthesia throughout the UK. Please DM for enquiries.
Royal College of Nursing verified
Registered:30 Sep 2024 11:11
Follow date:29 Jan 2025 22:01
We are a trade union & professional body with over half a million nurse, midwife, HCA, AP & student members. For membership and workplace queries: https://www.rcn.org.uk/Get-Hel... Page monitored Monday-Friday 8am-6pm
Nature verified
Registered:21 Nov 2024 17:45
Follow date:29 Jan 2025 22:00
Research, news, and commentary from Nature, the international science journal. For daily science news, get Nature Briefing: https://go.nature.com/get-Natu...