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Neuromuscular Disease Network for Canada
Follows by @nmd4c.ca
Rare Disease Day Official
Registered:2 Oct 2025 09:06
Follow date:20 Nov 2025 15:10
The global awareness raising campaign for people living with rare diseases. 🌍 28 February 2026
ERN EURO-NMD
Registered:1 Sep 2025 11:48
Follow date:16 Nov 2025 02:59
European Reference Network for Rare Neuromuscular Diseases
UCalgaryMedicine
Registered:15 Nov 2024 18:30
Follow date:30 Sep 2025 19:49
The University of Calgary's Cumming School of Medicine (CSM). #UCalgaryMed #ResearchMatters
CMAJ
Registered:21 Nov 2024 20:48
Follow date:23 Sep 2025 15:46
The Canadian Medical Association Journal Get weekly issues straight to your inbox: http://cmaj.ca/getCMAJ
University Health Network verified
Registered:14 Nov 2024 14:10
Follow date:22 Sep 2025 23:55
Canada's Hospital: Princess Margaret, Toronto General, Toronto Western, Toronto Rehab, West Park Healthcare & Michener. 🔗 uhn.ca
Le Neuro (Institut-Hôpital neurologique de Montréal)
Registered:19 Nov 2024 16:14
Follow date:16 Sep 2025 19:15
Compte officiel du Neuro (Institut-Hôpital neurologique de Montréal) Official account of The Neuro (Montreal Neurological Institute-Hospital)
World Muscle Society
Registered:4 Apr 2025 08:26
Follow date:23 Aug 2025 00:34
The World Muscle Society is a global, multidisciplinary community committed to advancing the science of neuromuscular disorders and the care for people living with them.
Buffer verified
Registered:9 Jan 2024 15:26
Follow date:23 Jul 2025 15:43
Create and share social media content anywhere, consistently. Built with 💙 by a global, remote team. ⬇️ Learn more about Buffer & Bluesky https://buffer.com/bluesky
Matthew Alexander, PhD
Registered:20 Oct 2024 14:16
Follow date:18 Mar 2025 14:55
Geneticist, Skeletal Muscle, Drug development, Gene therapies. Non-coding RNA, and Zebrafish Aficionado. Lover of all things muscle. All posts are my own. Instagram @thealexanderlab Lab website: https://www.uab.edu/medicine/p...
IMPaCT
Registered:18 Nov 2024 16:30
Follow date:10 Mar 2025 16:04
We are a community of mentors and partner organizations dedicated to Increasing capacity for Maternal and Paediatric Clinical Trials (IMPaCT) in Canada. To learn more visit impactrials.ca
RareKids-CAN
Registered:28 Feb 2025 16:14
Follow date:10 Mar 2025 15:08
RareKids-CAN is a diverse coalition of partners aimed at streamlining and accelerating rare disease clinical trials and access to innovative treatment for all patients and families in Canada. RareKids-CAN is funded by the CIHR.
The Lancet Neurology verified
Registered:3 Feb 2025 13:01
Follow date:6 Mar 2025 19:09
The Lancet Neurology is the leading journal in clinical neurology. We publish articles and reviews that advocate change in, or illuminate, clinical practice. 🌐 https://www.thelancet.com/jour...
Melissa Bowerman
Registered:11 Nov 2024 07:16
Follow date:28 Feb 2025 15:01
Professor of Neuromuscular & Skeletal Disorders, Keele University. I research pathologies and new treatments in rare neuromuscular & skeletal disorders. www.thebowermanlab.com
Maxime Rousseaux
Registered:5 Sep 2023 14:28
Follow date:28 Feb 2025 15:01
Associate Professor and CRC studying protein mislocalization, neurodegeneration and functional genomics at uOttawa Brain and Mind Research Institute and co-director of Genome Editing and Molecular biology core at uOttawa
bentzingerlab.bsky.social
Registered:28 Jan 2025 20:33
Follow date:28 Feb 2025 15:01
The skeletal muscle stem cell niche in health and disease Université de Sherbrooke https://www.bentzingerlab.com/
Institut de Myologie
Registered:12 Feb 2025 10:23
Follow date:26 Feb 2025 15:34
Centre d'expertise sur le #muscle et ses pathologies, créé en 1996, l'Institut de Myologie, avec ses 300 experts, a pour objectif de favoriser l’existence, la reconnaissance et l’essor de la myologie dans le monde. http://www.institut-myologie.o...
Hermien Kan
Registered:4 Oct 2023 11:28
Follow date:26 Feb 2025 15:34
Associate professor in the CJ Gorter MRI center at the department of Radiology of the LUMC, where I lead a research group focussing on Imaging in Neuromuscular Disease.
Andras Lakatos @LakatosLab
Registered:17 Nov 2024 15:12
Follow date:26 Feb 2025 15:34
Neurobiologist & Neurologist at Cambridge. My lab focuses on the biology of astrocytes/neurons & develops human organoid disease models to study their role in neurodegeneration and traumatic injuries.
University of Ottawa Heart Institute
Registered:21 Nov 2024 13:15
Follow date:26 Feb 2025 15:33
Canada's largest and foremost cardiovascular health centre, understanding, treating and preventing #heartdisease #UOHI
Tyson Graber
Registered:30 Dec 2023 15:49
Follow date:26 Feb 2025 15:33
Cell biologist. Interested in identifying & decoding the public health information stored in 💩. Posting Ottawa WAVE 🌊 (wastewater analytics for viral epidemiology)
Elizabeth McNally
Registered:13 Nov 2024 19:05
Follow date:26 Feb 2025 15:23
physician, scientist, sports fan
Lyndsay Murray
Registered:18 Feb 2025 21:34
Follow date:26 Feb 2025 15:23
Reseach and teaching academic at the University of Edinburgh. Interests in anatomy/spinal muscular atrophy/motor neuron development/plasticity/regeneration.
Bénédicte Chazaud
Registered:31 Mar 2024 17:27
Follow date:26 Feb 2025 15:23
Scientist trying to link cell biology and physiology. Skeletal muscle regeneration with a strong penchant for macrophages. Director of Research @ Inserm, Lyon, France
Nature Reviews Neurology
Registered:19 Nov 2024 11:56
Follow date:26 Feb 2025 15:23
Nature Reviews Neurology is a clinical review journal from Springer Nature. Follow us for the latest updates in neurology from the journal and beyond. www.nature.com/nrneurol
Marie-Pier Roussel 🇨🇦
Registered:25 Jan 2025 16:27
Follow date:26 Feb 2025 15:23
Alex Hoischen
Registered:18 Nov 2024 18:51
Follow date:26 Feb 2025 15:23
Genomic technologies: WES/WGS, long-read sequencing, optical genome mapping, somatic mutations; Immuno-genomics: rare diseases; immunodeficiencies; inborn errors of immunity; clonal hematopoiesis https://shorturl.at/MxQ7O https://www.immuno-genomics.co...
SickKids Foundation
Registered:18 Nov 2024 16:45
Follow date:26 Feb 2025 15:22
We support The Hospital for Sick Children in Toronto, Canada. #PrecisionChildHealth is here. #SKHealTheFuture #SickKidsVS
Marco Savarese
Registered:18 Dec 2024 08:49
Follow date:26 Feb 2025 15:22
Myofin Principal Investigator@Folkhälsan Research Center.
Jodi Allen
Registered:16 Nov 2024 18:33
Follow date:26 Feb 2025 15:22
Clinical Specialist Speech & Language Therapist in Progressive Neurological & Neuromuscular Disease, University College London Hospitals #NHS & #NIHR Clinical Doctoral Research Fellow, Centre for Medical Imaging #UCL
dm1myotonic.bsky.social
Registered:17 Nov 2024 00:18
Follow date:26 Feb 2025 15:22
Relaying the latest developments in the search for effective treatments for myotonic dystrophy type 1.
maritimespor.bsky.social
Registered:30 Dec 2024 16:21
Follow date:26 Feb 2025 15:22
Brain-Heart Interconnectome (BHI)
Registered:15 Jan 2025 15:58
Follow date:26 Feb 2025 15:22
Our vision is to transform the prevention and treatment of brain-heart interconnected conditions, improving the health and quality of life of Canadians and people worldwide.
Hetty Mulhall
Registered:3 Dec 2024 16:54
Follow date:26 Feb 2025 15:22
Associate Scientific Director at CIHR-IMHA | Views my own, reposts not endorsements | Non-practising Veterinary Surgeon
Brain Canada
Registered:13 Jan 2025 18:28
Follow date:26 Feb 2025 15:22
Brain Canada is a national non-profit organization that enables and supports excellent, innovative, paradigm-changing brain research in Canada. #BrainCanada
CureDuchenne
Registered:10 Dec 2024 22:52
Follow date:26 Feb 2025 15:22
Our mission is to cure Duchenne muscular dystrophy with our innovative venture philanthropy model that funds groundbreaking research, early diagnosis and treatment access.
Jean-Yves Duclos
Registered:18 Nov 2024 20:15
Follow date:26 Feb 2025 15:22
Papa, grand-papa, et économiste. Député de Québec 🇨🇦⚜️
Clinical Trials Ontario
Registered:16 Dec 2024 20:06
Follow date:26 Feb 2025 15:22
Making Ontario a preferred location for global clinical trials, while maintaining the highest ethical standards.
Amanda Doherty-Kirby (she/her)
Registered:12 Aug 2023 17:28
Follow date:26 Feb 2025 15:22
Mom of 6. Active patient partner with varied interests.
Rubén Marín-Juez
Registered:11 Oct 2023 18:34
Follow date:26 Feb 2025 15:22
Zebrafish, heart regeneration, endothelium Group Leader at @CR_CHUSJ Assistant Professor @UMontreal De Bilbao de toda la vida
John Walton Muscular Dystrophy Research Centre
Registered:30 Jan 2025 10:14
Follow date:26 Feb 2025 15:22
Performing world-class translational research to bring diagnosis, care and therapy to people with neuromuscular disease
L'Institut de recherche du CUSM / Research Institute of the MUHC
Registered:12 Feb 2025 21:05
Follow date:26 Feb 2025 15:22
L'Institut de recherche du Centre universitaire de santé McGill. Faire progresser la santé de précision tout au long de la vie. The Research Institute of the McGill University Health Centre. Advancing precision health throughout the life course.
SCPOR
Registered:9 Jan 2025 19:24
Follow date:26 Feb 2025 15:22
Saskatchewan Centre for Patient-Oriented Research
SPORAlliance
Registered:27 Nov 2024 14:52
Follow date:26 Feb 2025 15:21
The Strategy for Patient-Oriented Research (SPOR) Evidence Alliance is a pan-Canadian research initiative designed to promote evidence-informed health policy and practice changes, with patient and public partner engagement embedded throughout.
Jen Heemstra
Registered:24 Dec 2023 17:55
Follow date:26 Feb 2025 15:21
Professor and Chair of WashU Chemistry. I’m a researcher, but I’m a #MentorFirst. Author of Labwork to Leadership.
Women and Children's Health Research Institute
Registered:12 Dec 2024 18:52
Follow date:26 Feb 2025 15:21
The Women and Children’s Health Research Institute (WCHRI) supports research dedicated to improving the health and lives of women and children.
Saeed Anwar
Registered:22 Nov 2024 22:33
Follow date:26 Feb 2025 15:21
Genetic therapeutics researcher | Rare disease advocate | Sci-activist | Bengali SciFi writer | Overcaffeinated | Foodie | First-gen | 🇧🇩 ♡︎/⟳ ≠ endorsement
Svetlana Gorokhova
Registered:15 Nov 2024 12:07
Follow date:26 Feb 2025 15:21
Svetlana Gorokhova, M.D., Ph.D., is working in Marseille Medical Genetics (@univamu) and @aphm-chu-marseille in Marseille, France, remote member of NNDCS @NIH @NINDSnews
Physical & Occupational Therapy, McGill University
Registered:12 Dec 2024 15:16
Follow date:26 Feb 2025 15:21
The McGill School of Physical & Occupational Therapy (SPOT); creating leaders in rehabilitation practice, scientific innovation and community engagement.
metabern.bsky.social
Registered:9 Jan 2025 05:30
Follow date:26 Feb 2025 15:21