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Bluesky Follows
PA Rare Disease Advisory Council
Follows by @pardac.bsky.social
Patient Advocate Foundation
Registered:7 Mar 2025 14:53
Follow date:16 Dec 2025 16:25
Patient Advocate Foundation and the PAN Foundation have merged to create the nation's most comprehensive nonprofit dedicated to helping people navigate, access, and afford healthcare. Learn more at
uniting.patientadvocate.org
Rare Disease Clinical Trial Network
Registered:25 Nov 2024 13:15
Follow date:16 Dec 2025 16:24
HRB-funded clinical trial network aiming to increase the quantity and quality of rare disease clinical trials in Ireland, keeping the patient voice at our core.
Journal of Communication in Healthcare (JCIH)
Registered:12 Jan 2025 22:14
Follow date:16 Dec 2025 16:24
Leading journal by Taylor and Francis. Publishes research, interventions & perspectives on #healthcommunication in #healthcare #publichealth and #medicine.
https://linktr.ee/jcihonline
Rare Disease Advisor
Registered:10 Dec 2024 15:08
Follow date:16 Dec 2025 16:23
Trusted knowledge base of practical information and resources focused on treating and diagnosing #RareDisease.
https://www.rarediseaseadvisor...
Senator Amanda M. Cappelletti
Registered:13 Nov 2024 20:15
Follow date:13 Jun 2025 14:11
The official account of Senator Amanda M. Cappelletti, serving the people in PA's 17th District. She/ her. Follow on FB, IG, and Threads @SenCappelletti.
KFF
Registered:15 Nov 2024 19:08
Follow date:28 Feb 2025 14:23
The independent source for health policy research, polling, and news.
KFF Health News
Registered:15 Aug 2023 15:12
Follow date:28 Feb 2025 14:22
A national newsroom that produces in-depth journalism about health issues; a core program of @KFF.org.
Pennsylvania Developmental Disabilities Coucil (PADDC)
Registered:17 Jan 2025 22:11
Follow date:28 Feb 2025 14:14
The Council works to promote advocacy, drive systems change, and build community capacity alongside people with developmental disabilities and their families. We envision a Commonwealth where all people are valued and thrive.
Disability Rights Pennsylvania
Registered:6 Feb 2025 16:43
Follow date:28 Feb 2025 14:14
Protecting and Advancing the Rights of People with Disabilities in Pennsylvania.
https://www.disabilityrightspa...
Pennsylvania Department of Human Services
Registered:18 Nov 2024 14:23
Follow date:28 Feb 2025 14:02
Our vision is that all Pennsylvanians live safe, healthy, and independent lives, free of discrimination and inequity.
PA Department of Aging
Registered:18 Nov 2024 15:28
Follow date:28 Feb 2025 14:01
The Pennsylvania Department of Aging (PDA) oversees and administers aging services and advocates on behalf of older adults.
PA Department of Health
Registered:18 Nov 2024 14:16
Follow date:28 Feb 2025 14:01
Official account for the Pennsylvania Department of Health. DOH is Pennsylvania’s primary source for public health information and services.
EveryLife Foundation for Rare Diseases
Registered:27 Jan 2025 21:09
Follow date:28 Feb 2025 13:52
We empower the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments, and cures.
National Organization for Rare Disorders (NORD)
Registered:16 Jan 2025 21:39
Follow date:28 Feb 2025 13:52
NORD is a patient advocacy organization leading the fight to improve the lives of rare disease patients. Alone we are rare. Together we are strong.®
www.rarediseases.org
Bluesky
Registered:12 Apr 2023 04:53
Follow date:28 Feb 2025 13:23
official Bluesky account (check username👆)
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