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Bluesky Follows
Physios For ME
Follows by @physiosforme.bsky.social
Steve Fifield
Registered:5 Oct 2023 11:35
Follow date:28 Feb 2026 20:44
Informed decisions & verifiable facts please, not opinion & belief. UK. 🇬🇧
Mine of occasionally useful information.
NHS and healthcare 💙
#Equality #Justbe #Inclusion
#LGBTQ+ 🌈 ally
#pwME
#MECFS
#Activetravel 🚲
#Sustainability
#Gardening
#VisibleApp
European Medical Journal
Registered:10 Jan 2025 16:50
Follow date:22 Feb 2026 10:10
#1 open access destination for healthcare professionals globally.
🔗 emjreviews.com
Andy
Registered:14 Nov 2024 13:57
Follow date:5 Feb 2026 21:46
💚🚴🏼Ⓥ
hunt billionaires not foxes
Longcovid 🤬
valebodi.bsky.social
Registered:7 Oct 2023 02:21
Follow date:1 Sep 2025 18:01
Surviving MyalgicE, AAG & CVID to tell the story, patient & advocate w/ a JD. Into MEdical, Social & Climate Justice & Arts. Human neutrino/ PwME = ME apolide/ Gnarled pacer. MEssLand Worldwide https://www.tandfonline.com/do...
Norges ME-forening
Registered:24 Sep 2023 20:04
Follow date:7 May 2025 15:18
Norges ME-forening (Norwegian Myalgic Encephalopathy Association) jobber for å bedre situasjonen for landets ME-syke. Facebook: https://www.facebook.com/MEfor...
Waldmeer
Registered:21 Aug 2023 07:58
Follow date:2 Mar 2025 12:08
ME/CFS | Medizin | Wissenschaft
Website: https://bit.ly/waldmeer
Auch unter: @waldpol.bsky.social
European ME Coalition (EMEC)
Registered:3 Oct 2023 15:03
Follow date:11 Jan 2025 10:46
Advocacy organization for ME/CFS patients and their carers in Europe
Bateman Horne Center
Registered:6 Jan 2025 19:08
Follow date:11 Jan 2025 10:46
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
Dr Jo Greer
Registered:5 Oct 2023 15:43
Follow date:5 Jan 2025 20:46
Mum, Carer, Educational Psychologist
www.theredtreeandME.com
Wandering Sally
Registered:29 Aug 2023 05:18
Follow date:1 Jan 2025 18:14
Sally used to wander and wander... now merely existing in a life on hold.
DoB. 330ppm
Living on unceded Ngunnawal & Ngambri land.
Hannah Davis
Registered:5 May 2023 01:56
Follow date:28 Dec 2024 17:01
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
AMooney
Registered:9 Nov 2024 17:25
Follow date:28 Dec 2024 16:58
Occupational therapist, advocate, and caregiver dedicated to supporting individuals with chronic complex conditions. Offering therapeutic care for those affected by #MECFS, #LongCOVID, #POTS, #EDS, and related conditions.
Neurologist Mom
Registered:10 Nov 2024 16:35
Follow date:28 Dec 2024 16:58
A neurologist, M.D., mother of a 17-year-old with #Lupus #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains.
📍Seattle, WA
Scott Simpson
Registered:4 Oct 2023 16:03
Follow date:28 Dec 2024 16:58
Remedies Counseling:
Counselor only for people living w chronic illness - #MEcfs, #LongCOVID, vx injury, MCS/ES, #Lyme, #HIV, etc.
https://remediescounseling.com...
I am living w MEcfs and HIV.
Competed 3x at triathlon world champs.
Billy Hanlon
Registered:3 Oct 2023 18:30
Follow date:28 Dec 2024 16:57
ME/CFS | Long COVID | IACC | Stand with Minnesota
#MEAction Network
Registered:3 Oct 2023 18:13
Follow date:28 Dec 2024 16:57
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
Eric Topol
Registered:2 May 2023 18:42
Follow date:28 Dec 2024 16:57
physician-scientist, author, editor
https://www.scripps.edu/facult...
Ground Truths https://erictopol.substack.com
SUPER AGERS https://www.simonandschuster.c...
Mady Hornig, MA, MD
Registered:11 Sep 2023 10:38
Follow date:28 Dec 2024 16:57
Miriam E. Tucker
Registered:15 Nov 2024 18:35
Follow date:23 Dec 2024 21:28
Writer/journalist specializing in medicine/health. Living with type 1 diabetes since 1973.
sarah boothby
Registered:24 Oct 2023 08:51
Follow date:23 Dec 2024 16:13
Speaking up for everyone affected by severe/very severe ME.
#MEKills #MaeveInquest #LongCovidME
backstory https://x.com/swastrosarah?lan... #PlanForME #JusticeForME
ME is much more than chronic fatigue; it kills every year.
Mark Faghy
Registered:15 Nov 2024 09:27
Follow date:1 Dec 2024 18:03
Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
Andrew Green
Registered:26 Sep 2023 10:47
Follow date:28 Nov 2024 21:16
ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
Janet Dafoe
Registered:25 Sep 2023 06:56
Follow date:24 Nov 2024 20:45
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
Alli Hawes RN
Registered:24 Nov 2024 09:35
Follow date:24 Nov 2024 20:44
Head of School for Primary Care, working with Training Hubs in South East
QN SCPHN (HV) PFHEA
Interests: all things education, training and leadership/culture/OD
#LGBTQIA #Ally #GeneralPractice #PCNs
#PublicHealth
Julie Houston
Registered:2 Oct 2023 08:51
Follow date:24 Nov 2024 17:00
Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights.
I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new.
#CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
ME/CFS Science
Registered:2 Oct 2023 15:31
Follow date:17 Nov 2024 16:08
In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Formerly known as ME/CFS Skeptic.
https://mecfsscience.org/
Trude Schei
Registered:2 Sep 2023 17:16
Follow date:17 Nov 2024 16:08
ME patient advocate, architect by training
Dom
Registered:12 Nov 2024 20:44
Follow date:17 Nov 2024 16:08
Energetically compromised #pwME and patient advocate (when able) · Research scientist by trade · Interested in how we live · Open-minded but generally sceptical
https://domsalisbury.github.io
Simon McGrath
Registered:11 Oct 2023 20:21
Follow date:17 Nov 2024 16:08
I occasionally try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
Naomi Whittingham
Registered:11 Nov 2024 08:41
Follow date:17 Nov 2024 16:08
Writing is my voice from a hidden world. Published in The Daily Telegraph and Open Democracy. Now focusing on my own website.
www.alifehidden.com
Yann (ME/LC)
Registered:17 May 2024 18:58
Follow date:17 Nov 2024 16:08
Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak.
I care.
Ⓐ💚, (FR/DE/EN, but posts in english)
Clinging onto the ledge above the abyss.
Cyrus
Registered:11 Oct 2023 09:37
Follow date:17 Nov 2024 16:08
Energetically compromised (bedridden) by severe #MECFS. All systems operating at minimum capacity & overloaded. In a previous life: comp sci x math, powerlifting. #LongCovid ally.
marydimmock.bsky.social
Registered:11 Oct 2023 01:42
Follow date:17 Nov 2024 16:08
US ME patient advocate. Mother of a son and his wife who have ME and Long COVID. My other focus is on US politics and what's coming
Wilhelmina Jenkins
Registered:6 Nov 2024 22:35
Follow date:17 Nov 2024 16:08
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
Robert Saunders (aka McMullen)
Registered:11 Nov 2024 19:03
Follow date:17 Nov 2024 16:08
Author of "stranger and stranger”, letter writer, advocate and fundraiser for biomedical ME/CFS research.
Dr. Daniel Loy
Registered:7 Oct 2023 13:39
Follow date:17 Nov 2024 16:08
Adam
Registered:1 Oct 2023 22:58
Follow date:17 Nov 2024 16:08
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbatte...
Tilman Andris
Registered:4 Oct 2023 14:39
Follow date:17 Nov 2024 16:08
Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
Anil van der Zee
Registered:28 Aug 2023 20:41
Follow date:17 Nov 2024 16:08
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Dr. Sabine Hermisson 🦋
Registered:20 Aug 2023 22:00
Follow date:17 Nov 2024 16:08
PD Dr. (religion, empirical education research)
mother of Mila who suffers from very severe ME/CFS (Bell 0)
https://milaandmecfs.files.wor...
Vienna, Austria
#CleanAir
K G Leslie
Registered:15 Nov 2024 12:48
Follow date:15 Nov 2024 20:12
Neurological physiotherapist. Co-founder Physios for ME. PhD student @ Liverpool university
Emma Gore-Lloyd
Registered:10 Nov 2024 12:30
Follow date:13 Nov 2024 20:04
Co-founder #ThereForME | Calling for an NHS that's there for Long Covid & ME | https://www.thereforme.uk/
Linguist, DELTA-qualified English 2nd lang teacher | https://hiveofactivities.wordp...
Design | https://emmarubystudio.com/
She / her
Long Covid Support
Registered:16 Oct 2023 10:05
Follow date:13 Nov 2024 20:04
UK charity dedicated to supporting people with Long Covid
• Support • Research • Advocacy • Education •
www.longcovid.org
https://linktr.ee/longcovidsup...
📧info@longcovid.org
Long Covid Advocacy
Registered:19 Sep 2023 19:18
Follow date:13 Nov 2024 20:04
A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time...
💙📚Home to the #pedanticzebra book club.
https://www.longcovidadvoc.com...
🛍️ https://longcovidadvoc.shop/
A 😎 Long Covid and MECFS Billboards (DM for free merch!)
Registered:19 Oct 2024 01:04
Follow date:13 Nov 2024 20:04
Billboard campaign/fundraiser here
https://www.notrecovereduk.org
Long Covid Kids
Registered:25 Sep 2023 09:00
Follow date:13 Nov 2024 20:04
The first charity supporting & advocating for children & young people with Long Covid & overlapping illness.
#LongCovidKids #LongCovid #PaediatricLongCovid
#LongCovidAwareness #MECFS
Co-EQ
Registered:7 Aug 2024 16:51
Follow date:13 Nov 2024 20:04
Designing and incubating new purpose-led ventures and tech.
Binita Kane
Registered:9 Sep 2024 07:35
Follow date:13 Nov 2024 20:04
Long COVID/ME interested lung doctor | Campaigner | Independent SAGE | Co-Founder South Asian Heritage Month | Diversity Power List 24/25
Website: https://thelongcovidclinic.co....
Linktree: https://linktr.ee/binitakane
Patient Safety Learning
Registered:15 Aug 2024 11:43
Follow date:13 Nov 2024 20:04
Patient Safety Learning is a charity and independent voice for improving patient safety.
🔗Our website: https://www.patientsafetylearn...
🔗the hub, our platform to share learning for patient safety: https://www.pslhub.org/