×
You are not logged in
Bluesky Follows
skellou.bsky.social
Follows by @skellou.bsky.social
Nick Benton
Registered:19 Jan 2025 18:39
Follow date:12 Feb 2026 13:27
Last post:1 day ago
Last like given:1 day ago
Writer living with myalgic encephalomyelitis (ME) for five years.
Substack for all things ME: https://thepersonalme.substack...
EndMalnutritioninME
Registered:3 Oct 2023 09:53
Follow date:4 Dec 2025 11:03
Last post:5 days ago
Campaign for improvements in medical care for ME patients with gastrointestinal symptoms. http://25megroup.org
Dr Jo Greer
Registered:5 Oct 2023 15:43
Follow date:16 Nov 2025 13:58
Last post:16 Feb 2026
Mum, Carer, Educational Psychologist
www.theredtreeandME.com
Institute of Genetics and Cancer
Registered:14 Nov 2024 12:43
Follow date:16 Nov 2025 13:58
Last post:2 days ago
Last like given:23 hours ago
Last like received:2 days ago
Our mission is to improve the lives of people living with genetic disease and cancer through research.
Fatigatio e.V. - Bundesverband ME/CFS
Registered:7 Nov 2023 11:21
Follow date:17 Sep 2025 16:59
Last post:6 Jan 2026
Wir unterstützen Menschen mit ME/CFS (Myalgische Enzephalomyelitis / Chronisches Fatigue Syndrom) und setzen uns seit 1993 für Versorgung, Forschung und Aufklärung ein.
Größte deutsche Patientenorganisation mit gut 3.000 Mitgliedern.
youngEMERG
Registered:10 Feb 2025 14:57
Follow date:11 Sep 2025 15:35
Last post:4 days ago
young European ME Research Group - A European forum formed with EMERG to support and encourage early career researchers in ME/CFS research
https://youngemerg.com/index.s...
Jeremy Jeffs | photography & documentary
Registered:4 Jan 2025 16:49
Follow date:25 Aug 2025 17:17
Documentary photographer & film maker at Magnetofilms.com, editor/writer at PersonalWork.online
Currently working on projects about ME/CFS (I have lived experience), loneliness and men's mental health.
https://linktr.ee/jeremyjeffs
Swifts and Swallows
Registered:7 Nov 2024 12:58
Follow date:31 Jul 2025 13:04
My daughter had Severe ME, POTS & MCAS and died in 2024 after years of medical neglect.
I am also the parent carer of a younger daughter with ME & POTS.
Loves to see cute photos of cats, birds & animals so I can share with my daughter to brighten her day
Hilda Bastian
Registered:9 Sep 2023 01:49
Follow date:26 Jul 2025 06:56
Last post:5 days ago
Last like given:1 day ago
Last like received:2 days ago
Scientist (PhD she/her), writer, cartoonist. 🦘 Blogging & Newsletter: Living With Evidence https://hildabastian.wordpress... Mastodon enthusiast: @hildabast@mastodon.online
Tessa Munt MP 🔶
Registered:15 Nov 2024 13:31
Follow date:21 Jun 2025 17:06
Last post:6 days ago
Last like given:4 days ago
LibDem MP for Wells and Mendip Hills. Passionate to serve my home area with energy, experience, and deep care for people. tessa.munt.mp@parliament.uk
The Massachusetts ME/CFS and FM Association
Registered:31 Dec 2024 15:09
Follow date:13 Jun 2025 17:46
Last post:2 days ago
Last like received:2 days ago
To improve the lives of all people affected by ME/CFS, Fibromyalgia, Long COVID, and other Infection-Associated Chronic
Conditions and Illnesses (IACCIs) through advancing awareness, care, treatment and research.
https://www.massmecfs.org
Dr. Jeroen den Dunnen
Registered:13 Nov 2024 16:05
Follow date:13 Jun 2025 17:45
Last post:5 Mar 2026
Last like received:19 hours ago
Immunologist and Head of Department of CIMM at the Amsterdam UMC, Netherlands. My team studies the role of antibodies during infection and autoimmune diseases, with a particular focus on post-acute infection syndromes (PAIS), such as Long-COVID and ME/CFS.
MX-5 Owners Club
Registered:13 Nov 2024 11:35
Follow date:7 Jun 2025 17:46
Established in 1994 the MX-5 Owners Club is the world's largest Club dedicated to the ownership, use and promotion of the Mazda MX-5 (Miata/Roadster). Membership is open to all owners and enthusiasts of the MX-5.
Find out more at www.mx5oc.co.uk
Let's Learn Japanese! ジャパ日常【 JapaNichijou 】
Registered:4 Apr 2024 09:38
Follow date:7 Jun 2025 17:42
Last post:2 days ago
Last like given:5 hours ago
Last like received:1 day ago
一緒に楽しく日本語勉強しよう ⛩🗻👘🍣
Let's play Nihongo!!!
I tweet about Japanese words, sentences or grammar🌸
VRChat Group : https://vrc.group/JPHITS.0893
VRChat World : https://vrchat.com/home/world/...
Trish Davis
Registered:2 Oct 2023 18:19
Follow date:7 Jun 2025 17:38
Last post:10 Feb 2026
Retired maths teacher. ME/CFS 35 years. Volunteer staff member on Science for ME international forum, www.s4me.info
DrMichelleBull💙
Registered:3 Oct 2023 20:18
Follow date:7 Jun 2025 17:38
Last post:1 Mar 2026
A mixture of stuff
#MECFS #LongCovid #frailty #mtb #cycling
#feelthefearanddoitanyway
co-founder @PhysiosForME
Views are all my own
ME/CFS Science
Registered:2 Oct 2023 15:31
Follow date:7 Jun 2025 17:38
Last post:16 hours ago
Last like given:11 hours ago
Last like received:13 minutes ago
In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Formerly known as ME/CFS Skeptic.
https://mecfsscience.org/
European ME Coalition (EMEC)
Registered:3 Oct 2023 15:03
Follow date:7 Jun 2025 17:37
Last post:22 Dec 2025
Advocacy organization for ME/CFS patients and their carers in Europe
David Davies-Payne
Registered:10 Oct 2023 07:16
Follow date:7 Jun 2025 17:37
Last post:25 Feb 2026
Last like given:13 hours ago
Paediatric Radiologist, Aotearoa New Zealand
Following more immunologists than radiologists
#MECFS #LongCOVID and a bit of #MacDev #iOSDev
he/him
https://ddp.nz | https://dysimmune.nz
UniteToFight
Registered:18 Nov 2024 08:33
Follow date:7 Jun 2025 17:36
LongCovid & ME/CFS conference project. We’re a small group of affected people living with LC & ME/CFS, alongside dedicated supporters.
#UniteToFight2024
www.youtube.com/@unitetofight2...
Wes Ely, MD, MPH
Registered:30 Jul 2023 21:40
Follow date:7 Jun 2025 17:36
Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, Dementia, Delirium, PICS. Fighting misinformation. Posts my own. Still learning.
Dr David Joffe MB BS(Hons), PhD, FRACP
Registered:19 Sep 2023 21:50
Follow date:7 Jun 2025 17:36
Last post:10 hours ago
Last like given:4 hours ago
Last like received:2 hours ago
Respiratory and Sleep Medicine
Neurobiology and Long Cövid
WHN Long Covid Working Group Vice Chair
Ziyad Al-Aly MD
Registered:19 Oct 2024 17:26
Follow date:7 Jun 2025 17:36
Last post:3 days ago
Last like given:3 days ago
Last like received:2 hours ago
Physician | Scientist | working on Long Covid
Resia Pretorius
Registered:10 Nov 2024 21:58
Follow date:7 Jun 2025 17:34
Distinguished professor, Stellenbosch University and Honorary professor, University of Liverpool.
Long Covid Advocacy
Registered:19 Sep 2023 19:18
Follow date:7 Jun 2025 17:33
Last post:1 day ago
Last like given:4 hours ago
Last like received:17 hours ago
A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time...
💙📚Home to the #pedanticzebra book club.
https://www.longcovidadvoc.com...
🛍️ https://longcovidadvoc.shop/
Michael Stingl
Registered:22 Aug 2023 10:22
Follow date:7 Jun 2025 17:33
Last post:37 minutes ago
Last like given:1 day ago
Last like received:2 minutes ago
Facharzt für Neurologie
ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
Eric Topol
Registered:2 May 2023 18:42
Follow date:7 Jun 2025 17:32
Last post:12 hours ago
Last like given:11 hours ago
Last like received:40 seconds ago
physician-scientist, author, editor
https://www.scripps.edu/facult...
Ground Truths https://erictopol.substack.com
SUPER AGERS https://www.simonandschuster.c...
Janet Dafoe
Registered:25 Sep 2023 06:56
Follow date:7 Jun 2025 17:32
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
ICanCME Canadian Research Network
Registered:12 Oct 2023 04:32
Follow date:7 Jun 2025 17:32
Last post:5 Feb 2026
Last like received:3 days ago
Interdisciplinary #Canadian Collaborative #MyalgicEncephalomyelitis Research Network (created in 2019).
#MECFS #PwME #LongCovid
(Account managed by Sabrina.)
Carmen Scheibenbogen
Registered:29 Oct 2023 16:33
Follow date:7 Jun 2025 17:32
Last like received:3 days ago
Immunologist and ME/CFS researcher @Charité
https://cfc.charite.de/
Herbert Renz-Polster
Registered:20 Oct 2023 10:28
Follow date:7 Jun 2025 17:30
physician-researcher, paediatrician, ME/CFS since 2016. This account is about science, esp. CFS
PolyBio Research Foundation
Registered:17 Nov 2024 23:01
Follow date:7 Jun 2025 17:30
Last post:25 Feb 2026
Last like received:18 hours ago
501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
CrunchME
Registered:21 Nov 2024 11:44
Follow date:7 Jun 2025 17:30
CrunchME is a patient-led organisation, creating the evidence and insight base needed to crunch infection-associated chronic conditions (IACCs), including #MECFS and #LongCovid.
📍 https://crunchme.org/
rthm_health
Registered:17 Dec 2023 21:22
Follow date:7 Jun 2025 17:30
Last post:2 Mar 2026
Last like given:1 day ago
Last like received:2 days ago
RTHM is a secure health platform that makes it easy to gather your records, connect the dots with AI, and affordably access treatments.
Snow Leopard
Registered:6 Oct 2023 14:01
Follow date:7 Jun 2025 17:29
Last post:1 day ago
Last like given:41 minutes ago
Animagus. Hearty but not hale. Celebrant of beautiful action. Likes bicycles. Note: The only time I post with my real name is in scientific journals. Kaurna Country. She/Her.
Workwell Foundation
Registered:3 Nov 2023 19:53
Follow date:7 Jun 2025 17:28
Last post:4 Mar 2026
Last like received:3 days ago
#Nonprofit clinical #research providing 2-day #CPET #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses. workwellfoundation.org
Cort Johnson
Registered:3 Oct 2023 21:07
Follow date:7 Jun 2025 17:28
Last post:3 days ago
Last like received:15 hours ago
Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
Charlie Hillier
Registered:16 Nov 2024 09:36
Follow date:7 Jun 2025 17:28
Science, Molecular Biology, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Daniel Missailidis, PhD
Registered:22 Oct 2024 08:23
Follow date:7 Jun 2025 17:28
Last post:10 Feb 2026
Researching the cell biology of ME/CFS since 2016, now also Long COVID and PD. Papers: https://scholars.latrobe.edu.a...
Rowan Gardner
Registered:11 Dec 2023 13:58
Follow date:7 Jun 2025 17:27
Last post:25 Feb 2026
Founder & CBIO @precisionlife.bsky.social, NED @dhcwales.bsky.social & STFC Innovations Limited. Former Juror for Cartier Women's Initiative.
Interests #bio #diversity #ai #techbio #climate #precisionmedicine #digitalhealth personal account
PrecisionLife
Registered:6 Sep 2024 13:31
Follow date:7 Jun 2025 17:27
Last post:25 Feb 2026
Precision medicine for complex diseases. Creating better, more personalized diagnostics & treatments for unmet medical needs.
Join us for world-leading AI-led science, healthcare, diagnostics, & drug development.
Prof. Akiko Iwasaki
Registered:10 Nov 2024 16:28
Follow date:7 Jun 2025 17:25
We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines
British Geological Survey
Registered:26 Oct 2023 12:33
Follow date:7 Jun 2025 17:21
Last post:19 hours ago
Last like received:2 days ago
A world-leading independent research organisation providing objective, expert geoscientific data, information and knowledge 🌎
Carmen Joy Imes
Registered:16 Nov 2024 15:49
Follow date:7 Jun 2025 15:41
Last post:16 hours ago
Last like given:16 hours ago
Last like received:15 hours ago
Associate Professor of Old Testament, Talbot School of Theology; Author of Bearing God's Name, Being God's Image, and Becoming God's Family. YouTuber: Torah Tuesday.
Tim Mackie Discussion Group
Registered:27 Nov 2024 06:05
Follow date:7 Jun 2025 15:39
Study the Bible In Community - Seek, Study and Share
Tim Mackie and Jon Collins with The BibleProject
daily bunnies 🐇✨
Registered:20 Oct 2024 14:50
Follow date:7 Jun 2025 10:12
Last post:8 hours ago
Last like given:1 day ago
Last like received:17 seconds ago
your daily dose of bunnies ⸜(｡˃ ᵕ ˂ )⸝♡
Royal Free 1955
Registered:3 Oct 2023 15:24
Follow date:6 Jun 2025 17:10
Last post:1 Mar 2026
ME/CFS archive. For education, not profit. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. Reposts not necessarily endorsements. No art, emoji etc.
https://rfh1955.blogspot.com/
ME/CFS News
Registered:9 Sep 2023 05:07
Follow date:6 Jun 2025 17:09
News, interesting information and commentary on ME/CFS.
Science for ME online forum
Registered:21 Aug 2024 17:06
Follow date:6 Jun 2025 17:08
Last post:3 days ago
Last like received:3 days ago
We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us.
This account is maintained on a part-time basis by patients.
MEAction UK
Registered:16 Nov 2024 17:29
Follow date:6 Jun 2025 17:05
Last post:20 hours ago
Our movement fights for recognition, education, and research so that one day all people with ME (myalgic encephalomyelitis) will have access to rapid diagnosis, and compassionate, effective care.