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Bluesky Followers
Family Engagement in Research Training Program
Followers of @ferprogram.bsky.social
calinejesus.bsky.social
Registered:21 Feb 2026 21:47
popcornpediatrics.bsky.social
Registered:6 Feb 2025 18:40
Open Research and Public Engagement Roadmap
Registered:20 Mar 2025 20:50
Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
Jeanine
Registered:18 Mar 2025 00:52
Writer, research associate, podcaster, proud Canadian book lover in love with the written and spoken word. 🇨🇦♥️📚
Family-Centered Care Taskforce
Registered:2 Mar 2025 01:43
Supporting NICUs as they begin or strengthen Family-Centered Care in their units with free education, quality improvement opportunities, and resources!
hi-alifa.bsky.social
Registered:21 Sep 2025 05:56
SAPS FEO
Registered:3 Jul 2025 17:38
Family Engagement Office at St. Andrew's Primary School
Willow Poudan
Registered:27 Mar 2025 21:28
Experienced investor in many businesses and start-ups with a bias in Digital Financial Assets market.
Kids Brain Health Network
Registered:26 Jun 2025 18:41
Kids Brain Health Network is focused on early diagnosis, interventions, and support for children with neurodevelopmental disabilities and their families. Follow us on IG: @kidsbrainhealth
NIHR HealthTech Research Centre in Paediatrics and Child Health
Registered:3 Jul 2025 09:19
Supporting the development and commercialisation of medical technology for children and young people.
Hannah May Scott
Registered:3 Dec 2024 11:51
Research assistant at QMUL in childhood-onset hyperkinetic movement disorders and Multiple Sclerosis | PhD candidate at KCL (NIHR ARC South London) in Paediatric Palliative Care
christeph47.bsky.social
Registered:20 Jun 2025 20:37
Patient partner in research, quality improvement, standards development and governance initiatives with particular interest in AI, virtual care, digital health, and complex chronic illness. (all/any)
SCPOR
Registered:9 Jan 2025 19:24
Saskatchewan Centre for Patient-Oriented Research
Kathy Kastner
Registered:15 Sep 2023 01:12
Endlessly curious. I am wont to find humour (note Canadian spelling) everywhere. Author, Death Kills and other things I've learned on the internet. TED talk: Exit Laughing. Oh so glad to be here where the sky is blue and the tone is true.
Elise Kammerer
Registered:19 May 2025 21:15
PhD Candidate @UAlberta researching pain experiences of equity-deserving kids. patient partnership & co-creation | knowledge mobilization | justice. she/they📍yeg 🏳️🌈 Mom to 🙎♀️🐈🐈🐈🐈
Renegade Research
Registered:19 Oct 2024 23:38
Patient/Caregiver-led nonprofit 501c3 focused on #MECFS and #LongCovid • https://Renegade-Research.org 💙 Runs project @remissionbiome.bsky.social • Donate now ▶️ https://tinyurl.com/44azdsxm
Poetry At Play
Registered:24 Feb 2025 15:50
Michael C
Liberal Dem. Vegetarian. Humor. Reading. Science. Baseball. Dog rescuer
Creator and writer of Poetry At Play, a collection of hilarious, irreverent poems. Free to read at: https://humormc.com/
Dr Simon Stones
Registered:10 Nov 2024 18:24
🏳️🌈 he/him • Global Patient Engagement Leader & Medical Communications Specialist • EULAR PARE Committee Chair • ✈️ • 🎭 • 📸
QUOI Media 🇨🇦
Registered:26 Nov 2024 16:49
Communications firm working with experts including Nobel Laureates, academics and politicians to publish evidence-based commentaries on critical policy issues. www.quoimedia.com
Translating Research in Elder Care (TREC)
Registered:27 Jan 2025 19:44
An applied and partnered health services research program that develops innovations and practical solutions that contribute to sustainable improvements in quality of care and quality of life in long-term care (LTC) homes.
buketkara.bsky.social
Registered:29 Jan 2024 10:00
Lecturer & mental health researcher on a mission to tackle inequalities. Working with young people, families, schools, VCSEs, local authorities, NHS.
Also, loves playing boardgames and reading feminist science/fantastic fiction.
Jacqueline Carhoun
Registered:23 Apr 2025 08:42
PhD Candidate | Opioid Addictions | Co-Production | University of Sussex | REALab
Dale Coghlan
Registered:3 Feb 2025 01:20
Public health researcher 🎓 | Patient & community engagement 🤝 | Chronic disease prevention 📊| Nutrition & health science 🍏 | Always learning!.
Researcher @ Flinders University
#PublicHealth #PatientEngagement #HealthResearch #CKD
normanroots.bsky.social
Registered:11 Oct 2024 13:03
🇨🇦 Grandpa of 9, genealogist, MS Access developer, economist
Vincenza Gruppuso
Registered:21 Feb 2024 15:47
Lifelong Learner | Ask questions, Seek answers
CAPA
Registered:12 Dec 2024 01:00
The Canadian Arthritis Patient Alliance (CAPA) is a grass-roots, patient-driven, independent, national advocacy organization with members across Canada.
SPORAlliance
Registered:27 Nov 2024 14:52
The Strategy for Patient-Oriented Research (SPOR) Evidence Alliance is a pan-Canadian research initiative designed to promote evidence-informed health policy and practice changes, with patient and public partner engagement embedded throughout.
savoir innover 🇨🇦
Registered:13 Feb 2025 19:32
Vidéos & balados sur l’innovation canadienne | Videos & podcasts on Canadian innovation 🇨🇦
youtube.com/@SavoirInnover
savoirinnover.ca
alainacarr.bsky.social
Registered:15 Nov 2024 21:47
Clinical health psychologist and supportive oncology researcher striving to improve cancer care across the continuum.
DOHaD Canada
Registered:14 Feb 2025 14:17
Our Society focuses on the Developmental Origins of Health and Disease (DOHaD), advancing research, education, and policy initiatives that have a profound impact on local, national, and international communities.
https://www.dohad.ca
Morgaine Stiles
Registered:20 Nov 2024 13:47
PhD candidate and Clinical Trial Manager at the Clinical Trials and Statistics Unit at the Institute of Cancer Research.
Interested in clinical trial methodology, patient and public involvement, and science communication.
All views my own.
Johan van der Meulen
Registered:28 Feb 2025 10:16
As Innovation Director and co-owner @8d-design.bsky.social, I work with my team to develop and design effective solutions for societal challenges. My goal is to bridge the gap between valuable research and society using the Design Science Methodology.
International Patient and Public Involvement Network
Registered:3 Feb 2025 15:39
The International PPI Network connects individuals working in, involved with and interested in patient and public involvement across the globe. Join us at https://intppinetwork.wixsite....
Sarah Swenson
Registered:29 Sep 2023 11:11
Neonatologist trying to figure out how to better support families impacted by the NICU, advocating for improved access to perinatal mental healthcare, she/her, views are my own #Neosky
curiosunny.bsky.social
Registered:22 Jan 2025 01:39
Junior Einsteins Science Club®
Registered:18 Nov 2024 14:07
Award-winning Science events for kids. Founded Ireland☘️ Scientist, Mum, speaker United Nations 🇺🇳 Franchise owners bring hands-on, STEM fun Ireland 🇮🇪 UK 🇬🇧 Canada 🇨🇦 Saudi Arabia 🇸🇦International School Licience. Franchise. junioreinsteinsscienceclub.com
UConn Center for mHealth and Social Media
Registered:26 Feb 2025 18:12
We are an academic research center at the University of Connecticut devoted to using digital solutions and social media for health promotion and disease prevention. #digitalhealth
Janice Sorensen PhD RD
Registered:25 Feb 2025 02:04
Leader Clinical Research #LongTermCare & #AssistedLiving @fraserhealth.bsky.social | LTC & Food in Healthcare, Canadian #Malnutrition Task Force | #ClinicalNutrition #Geriatrics #Gerontology #Aging #Research #Engagement #KnowledgeMobilization RT≠endorse
Kirsten Prest
Registered:25 Feb 2025 15:44
Paediatric OT & HARP doctoral fellow at City St Georges University of London. Passionate about caregiver wellbeing, global child health, co-design, inclusion, & countryside dog walks. South-African born, living in the UK.
lisastewshaker.bsky.social
Registered:21 Feb 2025 00:59
Fenix Doherty
Registered:19 Feb 2025 19:15
They/Them
Student at UPEI in History and English, I enjoy reading, sewing, and causing problems (mostly joking). I get around on forearm crutches but still faster than most people
PenCRU @ University of Exeter Medical School
Registered:19 Feb 2025 10:25
We conduct applied childhood disability research in partnership with members of our Family Faculty to ensure research is relevant, useful and accessible https://www.pencru.org
Healthy Parent Carers Programme www.healthyparentcarers.org
8d-design.bsky.social
Registered:4 Feb 2025 10:18
8D bridges the gap between research and real-world application.
🤝 Co-design 🧠 Knowledge Transfer 📣 Dissemination | Specialized in design-driven approaches and creative product development. Based in Leeuwarden, operating globally! https://www.8d.nl/