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Family Engagement in Research Training Program
Follows by @ferprogram.bsky.social
Olga Nesterova verified
Registered:8 Nov 2024 16:04
Follow date:13 Nov 2025 13:28
Foreign Affairs Journalist | ONEST, Founder (Free) Global Briefing (Mon/Wed/Fri), Deep Dives (Thu), ONEST Explained (Tue) www.onestnetwork.com Videos: youtube.com/@onestnetwork
popcornpediatrics.bsky.social
Registered:6 Feb 2025 18:40
Follow date:12 Nov 2025 22:03
Open Research and Public Engagement Roadmap
Registered:20 Mar 2025 20:50
Follow date:12 Nov 2025 22:02
Co-Creating Ireland's Public Involvement in Open Research Roadmap ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
Jeanine
Registered:18 Mar 2025 00:52
Follow date:12 Nov 2025 22:02
Writer, research associate, podcaster, proud Canadian book lover in love with the written and spoken word. 🇨🇦♥️📚
Kids Brain Health Network
Registered:26 Jun 2025 18:41
Follow date:9 Jul 2025 20:31
Kids Brain Health Network is focused on early diagnosis, interventions, and support for children with neurodevelopmental disabilities and their families. Follow us on IG: @kidsbrainhealth
NIHR HealthTech Research Centre in Paediatrics and Child Health
Registered:3 Jul 2025 09:19
Follow date:3 Jul 2025 17:21
Supporting the development and commercialisation of medical technology for children and young people.
Hannah May Scott
Registered:3 Dec 2024 11:51
Follow date:3 Jul 2025 00:24
Research assistant at QMUL in childhood-onset hyperkinetic movement disorders and Multiple Sclerosis | PhD candidate at KCL (NIHR ARC South London) in Paediatric Palliative Care
christeph47.bsky.social
Registered:20 Jun 2025 20:37
Follow date:26 Jun 2025 20:26
Patient partner in research, quality improvement, standards development and governance initiatives with particular interest in AI, virtual care, digital health, and complex chronic illness. (all/any)
SCPOR
Registered:9 Jan 2025 19:24
Follow date:3 Jun 2025 17:25
Saskatchewan Centre for Patient-Oriented Research
Kiran Nabil
Registered:18 Mar 2025 10:00
Follow date:2 Jun 2025 21:07
Kathy Kastner
Registered:15 Sep 2023 01:12
Follow date:31 May 2025 01:10
Endlessly curious. I am wont to find humour (note Canadian spelling) everywhere. Author, Death Kills and other things I've learned on the internet. TED talk: Exit Laughing. Oh so glad to be here where the sky is blue and the tone is true.
Elise Kammerer
Registered:19 May 2025 21:15
Follow date:23 May 2025 18:28
PhD Candidate @UAlberta researching pain experiences of equity-deserving kids. patient partnership & co-creation | knowledge mobilization | justice. she/they📍yeg 🏳️‍🌈 Mom to 🙎‍♀️🐈🐈🐈🐈
Dr Simon Stones
Registered:10 Nov 2024 18:24
Follow date:10 May 2025 02:15
🏳️‍🌈 he/him • Global Patient Engagement Leader & Medical Communications Specialist • EULAR PARE Committee Chair • ✈️ • 🎭 • 📸
buketkara.bsky.social
Registered:29 Jan 2024 10:00
Follow date:6 May 2025 20:16
Lecturer & mental health researcher on a mission to tackle inequalities. Working with young people, families, schools, VCSEs, local authorities, NHS. Also, loves playing boardgames and reading feminist science/fantastic fiction.
Jacqueline Carhoun
Registered:23 Apr 2025 08:42
Follow date:6 May 2025 20:16
PhD Candidate | Opioid Addictions | Co-Production | University of Sussex | REALab
Translating Research in Elder Care (TREC)
Registered:27 Jan 2025 19:44
Follow date:22 Apr 2025 19:34
An applied and partnered health services research program that develops innovations and practical solutions that contribute to sustainable improvements in quality of care and quality of life in long-term care (LTC) homes.
Dale Coghlan
Registered:3 Feb 2025 01:20
Follow date:22 Apr 2025 19:00
Public health researcher 🎓 | Patient & community engagement 🤝 | Chronic disease prevention 📊| Nutrition & health science 🍏 | Always learning!. Researcher @ Flinders University #PublicHealth #PatientEngagement #HealthResearch #CKD
CAPA
Registered:12 Dec 2024 01:00
Follow date:4 Apr 2025 17:37
The Canadian Arthritis Patient Alliance (CAPA) is a grass-roots, patient-driven, independent, national advocacy organization with members across Canada.
QUOI Media 🇨🇦
Registered:26 Nov 2024 16:49
Follow date:4 Apr 2025 17:37
Communications firm working with experts including Nobel Laureates, academics and politicians to publish evidence-based commentaries on critical policy issues. www.quoimedia.com
savoir innover 🇨🇦
Registered:13 Feb 2025 19:32
Follow date:1 Apr 2025 18:43
Vidéos & balados sur l’innovation canadienne | Videos & podcasts on Canadian innovation 🇨🇦 youtube.com/@SavoirInnover savoirinnover.ca
SPORAlliance
Registered:27 Nov 2024 14:52
Follow date:29 Mar 2025 04:01
The Strategy for Patient-Oriented Research (SPOR) Evidence Alliance is a pan-Canadian research initiative designed to promote evidence-informed health policy and practice changes, with patient and public partner engagement embedded throughout.
alainacarr.bsky.social
Registered:15 Nov 2024 21:47
Follow date:24 Mar 2025 15:10
Clinical health psychologist and supportive oncology researcher striving to improve cancer care across the continuum.
Lawrence (Larry) Mróz
Registered:21 Oct 2024 20:37
Follow date:21 Mar 2025 20:45
Vancouver BC Canada (Formerly @DrMroz on twitter) #PatientOrientedResearch Capacity Development, BC SUPPORT Unit, Michael Smith Health Research BC. #SPOR, #CIHR Posting on #PatientEngagement in research, #POR, #LearningHealthSystems & #LearningCommunities
Anya Swain
Registered:21 Jan 2025 20:34
Follow date:20 Mar 2025 21:26
DOHaD Canada
Registered:14 Feb 2025 14:17
Follow date:20 Mar 2025 21:26
Our Society focuses on the Developmental Origins of Health and Disease (DOHaD), advancing research, education, and policy initiatives that have a profound impact on local, national, and international communities. https://www.dohad.ca
canchild.bsky.social
Registered:10 Mar 2025 18:34
Follow date:17 Mar 2025 21:20
Morgaine Stiles
Registered:20 Nov 2024 13:47
Follow date:17 Mar 2025 21:19
PhD candidate and Clinical Trial Manager at the Clinical Trials and Statistics Unit at the Institute of Cancer Research. Interested in clinical trial methodology, patient and public involvement, and science communication. All views my own.
Johan van der Meulen
Registered:28 Feb 2025 10:16
Follow date:12 Mar 2025 17:45
As Innovation Director and co-owner @8d-design.bsky.social, I work with my team to develop and design effective solutions for societal challenges. My goal is to bridge the gap between valuable research and society using the Design Science Methodology.
International Patient and Public Involvement Network
Registered:3 Feb 2025 15:39
Follow date:12 Mar 2025 17:45
The International PPI Network connects individuals working in, involved with and interested in patient and public involvement across the globe. Join us at https://intppinetwork.wixsite....
Sarah Swenson
Registered:29 Sep 2023 11:11
Follow date:5 Mar 2025 12:53
Neonatologist trying to figure out how to better support families impacted by the NICU, advocating for improved access to perinatal mental healthcare, she/her, views are my own #Neosky
Fenix Doherty
Registered:19 Feb 2025 19:15
Follow date:25 Feb 2025 22:56
They/Them Student at UPEI in History and English, I enjoy reading, sewing, and causing problems (mostly joking). I get around on forearm crutches but still faster than most people
Kirsten Prest
Registered:25 Feb 2025 15:44
Follow date:25 Feb 2025 22:56
Paediatric OT & HARP doctoral fellow at City St Georges University of London. Passionate about caregiver wellbeing, global child health, co-design, inclusion, & countryside dog walks. South-African born, living in the UK.
8d-design.bsky.social
Registered:4 Feb 2025 10:18
Follow date:19 Feb 2025 16:11
8D bridges the gap between research and real-world application. 🤝 Co-design 🧠 Knowledge Transfer 📣 Dissemination | Specialized in design-driven approaches and creative product development. Based in Leeuwarden, operating globally! https://www.8d.nl/
PenCRU @ University of Exeter Medical School
Registered:19 Feb 2025 10:25
Follow date:19 Feb 2025 16:11
We conduct applied childhood disability research in partnership with members of our Family Faculty to ensure research is relevant, useful and accessible https://www.pencru.org Healthy Parent Carers Programme www.healthyparentcarers.org
Heather Peel
Registered:18 Nov 2024 11:24
Follow date:19 Feb 2025 16:11
Mental Health Researcher with a strong drive for more PPIE
G. Bellissimo
Registered:16 Dec 2023 01:45
Follow date:14 Feb 2025 21:05
She/her. Knowledge seeker, gelato lover. #patientengagement #research #mentalhealth #PatientOrientedResearch 🇨🇦
Psycle Lab
Registered:13 Feb 2025 18:13
Follow date:14 Feb 2025 21:05
Learning to understand, address, and prevent reproductive-related distress | @MUNPsych | Lab Director @AshleyBalsom
Aidan Scott
Registered:12 Sep 2023 22:50
Follow date:12 Feb 2025 00:30
I help healthcare avoid assumptions by supporting public participation in quality improvement. Dad to two toddlers, big fan of (🥜🧈)+🍌 sandwiches and Astro Boy.
Paula Bush
Registered:24 Nov 2024 22:11
Follow date:11 Feb 2025 18:00
Academic associate, Dept. Family Medicine, McGill University | Associée aux activités professorales, Dépt. de Médecine de famille, Université McGill
CMcG Rheum
Registered:17 Nov 2024 14:16
Follow date:11 Feb 2025 18:00
#Hospital, #MD, #Rheumatology, UK based. A chemistry PhD & pharma bg, came to medicine late Scrolling is a distraction from taking action. Pick some concrete way to help & get to it. @twofishnocat.bsky.social for the likes/hobbies stuff
Keelin O’Donoghue
Registered:6 Nov 2024 18:21
Follow date:11 Feb 2025 18:00
Obstetrician & MFM | Lead @ Pregnancy Loss Research Group | Professor, UCC | PI, INFANT | Lead, Guidelines @ NWIHP https://www.ucc.ie/en/pregnanc... #PregnancyLoss #FetalMedicine #ReproductiveHealth #MedSky
breathewellphysio.bsky.social
Registered:10 Jan 2025 14:35
Follow date:11 Feb 2025 18:00
Cambria
Registered:17 Nov 2024 16:56
Follow date:23 Jan 2025 19:49
Cambridge MA parent | Director of the MA Statewide Family Engagement Center | Senior Program Director @FCSN | masfec.org | Southern transplant, dog mom, YIMBY supporter of bike safety and accessibility in our communities
Amanda Doherty-Kirby (she/her)
Registered:12 Aug 2023 17:28
Follow date:23 Jan 2025 19:49
Mom of 6. Active patient partner with varied interests.
sarahbridgesnb.bsky.social
Registered:23 Jan 2025 15:42
Follow date:23 Jan 2025 19:49
Jennifer Johannesen
Registered:14 Nov 2024 13:32
Follow date:20 Jan 2025 21:42
I make websites and also think a lot about healthcare. Bioethicist. Author of No Ordinary Boy ❤️
Dr. Olaf
Registered:19 Jan 2025 01:49
Follow date:20 Jan 2025 21:42
Developmental Pediatrician
Martine Lamy
Registered:16 Nov 2024 14:02
Follow date:20 Jan 2025 21:42