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Gregor Hammerschmidt
@hammerschmidt.io
11 followers, 21 follows, 2 posts
Followers of @hammerschmidt.io
Bernadette Sheehan Gilroy
@sheehangilroy.bsky.social
117 followers, 138 follows, 20 posts
Registered:20 Nov 2024 09:02
Lecturer Researcher Advocate #PKU #LowProtein #BrainHealth #RareDisease "Ní neart go cur le chéile" The views and opinions expressed here are solely my own
Avishek ghosh
@avishekcolours.bsky.social
53,008 followers, 248,376 follows, 3,681 posts
Registered:1 Dec 2024 16:42
Duncan Noble-Nesbitt
@duncann-n.bsky.social
17 followers, 12 follows, 1 posts
Registered:23 Jan 2025 22:29
Specialist Nurse, tenor, travel loving, new experience, answer seeking type of guy. Lifelong PKU experience and on treatment #PKU #RareDisease Own views shared
E.S.PKU
@espku.org
37 followers, 14 follows, 190 posts
Registered:20 Nov 2024 19:04
E.S.PKU - European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria in the umbrella organization of about 41 national and regional associations from 31 countries established by parents and/or patients.
Jennifer J Brown
@jjunebrown.bsky.social
3,303 followers, 1,719 follows, 922 posts
Registered:22 Nov 2024 01:12
#Author, #publichealth advocate, #genetics PhD. Creatively driven & scientifically inspired, Mom of 2 with #PKU. Latest book: When the Baby Is Not OK: Hopes & Genes https://jjbrownauthor.com/
Sharon Bee
@sharonbuckley.bsky.social
39 followers, 49 follows, 19 posts
Registered:18 Aug 2024 22:21
Brexit pushed Uk migrant navigating life in Spain. Mum to two phenomenal kids living with the genetic metabolic condition PKU. https://www.researchgate.net/p...
Soheb
@sohebm.com
131 followers, 157 follows, 439 posts
Registered:11 Nov 2024 09:49
Wrangles code and dodges protein for a living (PKU).
Tricia Rutherford
@squirrelt.bsky.social
29 followers, 50 follows, 4 posts
Registered:13 Nov 2024 15:34
Professional interest in nutrition in rare disease. Very amateur interest in music and sport !
Kevin Alexander
@kevinalexander-pku.bsky.social
27 followers, 28 follows, 19 posts
Registered:23 Jan 2025 19:52
🧬 Adult with Phenylketonuria (PKU) 🎥 Storyteller 📔Writer 🎸 Musician
Mark Maguire
@markmaguireb.bsky.social
2,062 followers, 4,359 follows, 3,653 posts
Registered:7 Dec 2023 16:15
Works #museum #education. Here for the #art, #comics, #SciFi, #news | Photos mine or otherwise credited. Followers with bio, activity, etc. more likely to become mutuals | ☘️ #SpeirGorm / #SpéirGhorm | 🐘 @MarkMaguire@mastodon.ie | 🧵 @markbmaguire
Małgorzata Henek
@malhen.bsky.social
54 followers, 42 follows, 106 posts
Registered:13 Nov 2024 10:38
Board member of European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria, social services specialist, patient advocate. ♥️: 📖🚗✈️🎶📺