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Bluesky Followers
E.S.PKU
Followers of @espku.org
B4hkro
Registered:18 Aug 2023 17:46
Marie Lund Alveberg
Registered:16 Sep 2025 07:40
Mom, teacher, outdoor enthusiast & animal lover. Politics • Poetry • History • Pedagogy. «I always wondered why somebody didn’t do something about that. Then I realized I am somebody."
Styrkepoesi: https://www.instagram.com/mari...
Avishek ghosh
Registered:1 Dec 2024 16:42
European Health Forum Gastein
Registered:9 Sep 2024 13:25
Cecelia Care ♥️
Registered:4 Jun 2025 03:54
✨ Tools for caregiving, built with compassion and conscience. We stand for LGBTQIA+ rights, health equity, racial equality, sustainability, and economic justice.✨
#Health #Healthcare #ElderCare #News
😷💉♥️📰
linktr.ee/ceceliacares
Shuishan (Susan) Hu
Registered:10 Jun 2025 17:48
PKU adult ~ library enthusiast ~ master bookworm ~ I write because poetry is cheaper than therapy
subsurrive.bsky.social
Registered:14 Mar 2025 14:58
James Barham
Registered:14 Oct 2023 20:32
Dadding, nursing, PKUing. House servant to the child and @emmavardy2.bsky.social
Biorecognition group
Registered:24 Mar 2025 09:59
Biorecognition group, Department of Biomedicine, University of Bergen, Norway.
We love proteins!
Craig 🌎 🛩️ 💙🇨🇦
Registered:14 Nov 2024 13:55
A seasoned travel writer that brings destinations to life through vivid detail, immersive storytelling, and firsthand experiences.
🚫 crypto / forex
🚫 unkind people
🚫 sales / solicitation
🚫 money requests / go fund me
TheChartyB
Registered:7 Nov 2024 00:59
Mapping the extremist network, one bigot at a time.
All my graphics and work can be found on my website:
https://thechartyb.com/links
monstererik.bsky.social
Registered:18 Nov 2024 21:32
Alison A.
Registered:23 Jan 2025 00:30
Orange County, CA.
Proud mom of a young adult who has phenylketonuria. Very grateful for newborn screening & advancements in treatments.
Caregiver of a loved one who has AML & recently had a stem cell transplant. Eternally grateful to the donor.
Sharon Bee
Registered:18 Aug 2024 22:21
Brexit pushed Uk migrant navigating life in Spain. Mum to two phenomenal kids living with the genetic metabolic condition PKU.
https://www.researchgate.net/p...
thomasapb.bsky.social
Registered:2 Feb 2025 09:43
bibliopepper.bsky.social
Registered:4 Dec 2024 14:50
risaroo5678.bsky.social
Registered:19 Jan 2025 00:08
Jennifer J Brown
Registered:22 Nov 2024 01:12
#Author, #publichealth advocate, #genetics PhD.
Creatively driven & scientifically inspired, Mom of 2 with #PKU.
Latest book: When the Baby Is Not OK: Hopes & Genes
https://jjbrownauthor.com/
Duncan Noble-Nesbitt
Registered:23 Jan 2025 22:29
Specialist Nurse, tenor, travel loving, new experience, answer seeking type of guy. Lifelong PKU experience and on treatment #PKU #RareDisease Own views shared
Kevin Alexander
Registered:23 Jan 2025 19:52
🧬 Adult with Phenylketonuria (PKU)
🎥 Storyteller
📔Writer
🎸 Musician
bojanat.bsky.social
Registered:22 Jan 2025 12:33
Rachel Brannick
Registered:16 Nov 2024 12:10
PhD Researcher in Law and Criminology @maynoothlaw | Researching the impact of technology on conflict-related sexual violence | PKU mother and advocate
Research at Northern Care Alliance NHS Foundation Trust
Registered:21 Jan 2025 10:36
Research & Innovation is an integrated service at Northern Care Alliance NHS Foundation Trust, including hospital and community services at Salford Royal, The Royal Oldham Hospital, Fairfield General Hospital and Rochdale Infirmary
Zofia 🧡
Registered:11 Oct 2024 07:11
nb she/her | 31 | Poland | mostly motorsports (F1, WRC) and winter sports (ski jumping, noco) | currently obsessed with KCD
Dr Julie Abayomi
Registered:11 Sep 2024 17:26
A registered Dietitian working in academia. Associate Head of Medicine and Nutrition at Edge Hill University. Passionate about maternal nutrition. Founder member of the BDA Maternal and Fertility Nutrition specialist group.
Małgorzata Henek
Registered:13 Nov 2024 10:38
Board member of European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria, social services specialist, patient advocate. ♥️: 📖🚗✈️🎶📺
Paul D McKellar
Registered:18 Nov 2024 16:24
Soheb
Registered:11 Nov 2024 09:49
Wrangles code and dodges protein for a living (PKU).
Mark Maguire
Registered:7 Dec 2023 16:15
Works #museum #education. Here for the #art, #comics, #SciFi, #news | Photos mine or otherwise credited. Followers with bio, activity, etc. more likely to become mutuals | ☘️ #SpeirGorm / #SpéirGhorm | 🐘 @MarkMaguire@mastodon.ie | 🧵 @markbmaguire
Mark
Registered:20 Jul 2024 07:29
Video production, Injustice, Post Office Horizon cases
Emma Vardy
Registered:24 Sep 2023 20:20
Physician. Honorary Professor of Geriatric Medicine. Delirium. Dementia. Quality improvement. Book lover. Northerner. Mum to daughter with PKU.
International PKU Day
Registered:11 Jan 2025 14:57
International PKU Day was established and is led by the E.S.PKU to celebrate the legacy of Horst Bickel and Robert Guthrie as well as to raise awareness of Phenylketonuria.
Journal of Inherited Metabolic Disease
Registered:10 Nov 2024 03:31
The Journal of Inherited Metabolic Disease (JIMD) is the official journal of the Society for the Study of Inborn Errors of Metabolism (SSIEM).
Social Media maintained by James Nurse
Gregor Hammerschmidt
Registered:24 Dec 2023 16:10