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Bluesky Followers
NF (Neurofibromatosis) Midwest
Followers of @nfmidwest.org
Lola's Mindful Fella
Registered:21 Nov 2024 16:28
πΊπΈπ³π΄πΊπ¦π³οΈβππ―π΄β
"Your Silence Will Not Protect You" - Audre Lorde
"Find out who you really are, then accept who you are. Fight for your life every day to be who you are.β - Ari Up
I have chronic illness and painting is how I cope.
she/her
Sam
Registered:14 Nov 2024 18:02
New here. Still trying to find my place and what I want this to be.
π¨π¦ | Overthinker | INFP | Pisces |
W. Kelly Oja
Registered:14 Nov 2024 18:33
Tonie Konig
Registered:12 Oct 2025 10:13
Co-founder Pharma Trial Connect, AI matching patients to clinical trials globally, fast and efficient...
Yggdrasil Designs
Registered:21 Jan 2025 18:45
My Hobby Is Collecting Hobbies
https://linktr.ee/Yggdrasil_De...
Reading/Writing/Movies/Video Games/Board Games
Creator/Designer - Revontulet (Board game [card game] aiming for 2026 release)
Anthem Grace
Registered:10 Nov 2024 20:06
They/Them π²π½
NF1ππ₯
18yo
Owner of Neurofibromatosis and OA feed
β Mildly Christian β
jmrsands.bsky.social
Registered:22 Mar 2025 15:37
Robert Allaway
Registered:2 Dec 2024 19:32
Rare disease @sagebio
Patty Woodside
Registered:20 Nov 2024 15:20
Chandler, Arizona
π΅ππ Love to Sew, Avid reader, love gardening, hiking, and sunshine.
I have 2 Etsy shops: www.pinkiepetunia.etsy.com and www.wildwoodtreasureco.etsy.co...
NF2 BioSolutions UK & Europe
Registered:3 Feb 2025 13:39
Volunteer, patient led charity. Dedicated to NF2 Research. Raising awareness through advocacy, support & hope. Fundraising for new treatments or a cure to NF2 Schwannomatosis.
AndrΓ©s Lessing βοΈ βοΈ βοΈ
Registered:9 Oct 2023 03:00
π¦π·πΊπ² Trying to navigate the craziness. Neurofibromatosis/Schwanomatosis advocate & Patient Representative. Sarcoma Survivor.
HurricaneMercedes
Registered:12 Nov 2024 01:13
I have a genetic condition called Neurofibromatosis type 1. I am passionate about raising awareness. I am a voracious reader. Cooking and baking are other passions.
Amber
Registered:8 Jan 2025 03:53
NO DMs
Former kitten foster πββ¬οΈππΎ
Proud Progressive Liberal π
Queer π³οΈβπ
Disabled βΏοΈ
Dyslexic not Dumb
Neurofibromatosis 1
Agnostic
Error 404
Registered:22 Jan 2025 02:26
Here for the people.
#Neurofibromatosis Fighter.
My cool fact is that I light up like an Christmas tree on my PET Scan. #NF1
RASopathies Network
Registered:25 Nov 2024 19:25
Nonprofit research advocacy org for conditions caused by dysfunctional RAS/MAPK signaling. #rasopathies #raredisease
by Stronach in Pittsburgh
Saturnπͺ- Velvette's Gold Sub
Registered:11 Aug 2023 20:44
27βοΈHe/Him, Z-List Youtuber, PNGTuber, ζ₯ζ¬θͺγεεΌ·γγ¦γγΎγ, Hobbyist Game Dev, Shy weirdo, HazH/HB Lover, Anakin Skywalker apologist, Velvette's most dedicated follower
Yes I am wolf, awoo and other wolf noises
π€π©Άπ€π
https://ko-fi.com/saturnwolf β€οΈβ¨
NF Bot
Registered:16 Nov 2024 22:21
NF Bot looking to publish any news, pubmed articles, NF Events, Reddit posts and Bluesky posts.
Please let me know if something doesn't look right.
Kewee π
Registered:6 Feb 2024 21:14
Maman de 2 garΓ§ons extra-ordinaires dont 1 dysphasique TED et 1 avec NF1 multidys & TDAH en rechute dβun cancer.
Infographiste sur mon temps libre (cristudio.fr)
sauver des vies : dondemoelleosseuse.fr
aider les enfants malades : sourirealavie.fr