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NF (Neurofibromatosis) Midwest
Follows by @nfmidwest.org
Anthem Grace
Registered:10 Nov 2024 20:06
Follow date:22 Jan 2025 05:04
They/Them πŸ‡²πŸ‡½ NF1πŸ€πŸ₯ 18yo Owner of Neurofibromatosis and OA feed † Mildly Christian †
RASopathies Network
Registered:25 Nov 2024 19:25
Follow date:22 Jan 2025 05:03
Nonprofit research advocacy org for conditions caused by dysfunctional RAS/MAPK signaling. #rasopathies #raredisease by Stronach in Pittsburgh
HurricaneMercedes
Registered:12 Nov 2024 01:13
Follow date:22 Jan 2025 05:03
I have a genetic condition called Neurofibromatosis type 1. I am passionate about raising awareness. I am a voracious reader. Cooking and baking are other passions.
NF Bot
Registered:16 Nov 2024 22:21
Follow date:22 Jan 2025 04:12
NF Bot looking to publish any news, pubmed articles, NF Events, Reddit posts and Bluesky posts. Please let me know if something doesn't look right.
Neurofibromatosis Awareness
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Registered:23 Nov 2024 00:12
Follow date:22 Jan 2025 04:10
Bluesky verifier
Registered:12 Apr 2023 04:53
Follow date:22 Jan 2025 03:57
official Bluesky account (check usernameπŸ‘†) Bugs, feature requests, feedback: support@bsky.app