×
You are not logged in
Bluesky Follows
kudosscience.bsky.social
Follows by @kudosscience.bsky.social
EBRAINS
Registered:24 Nov 2023 09:12
Follow date:1 Mar 2026 16:50
Last post:1 hour ago
EBRAINS is an open research infrastructure that provides data, tools and services for brain-related research.
The Associated Press
Registered:1 Aug 2023 18:15
Follow date:3 Feb 2026 13:19
Last post:14 minutes ago
Last like received:14 seconds ago
Advancing the power of facts, globally 🌎
ControlAI
Registered:18 Nov 2024 16:27
Follow date:3 Feb 2026 13:18
Last post:22 hours ago
We work to keep humanity in control.
Subscribe to our free newsletter: https://controlai.news
Join our discord at: https://discord.com/invite/ptP...
Eric Wastl
Registered:28 Nov 2024 09:25
Follow date:12 Dec 2025 23:46
Last post:13 Dec 2025
Created http://adventofcode.com, http://compute-cost.com, http://anoik.is, http://was.tl/projects/; Principal Architect at https://acvauctions.com
Bob Nystrom
Registered:8 Jun 2023 23:21
Follow date:11 Dec 2025 14:29
Last post:5 Feb 2026
Dad, husband, brother, son. Working on Dart at Google, ex-game dev at EA, wrote "Game Programming Patterns" and "Crafting Interpreters". http://stuffwithstuff.com/
European ME Coalition (EMEC)
Registered:3 Oct 2023 15:03
Follow date:6 Dec 2025 13:46
Last post:22 Dec 2025
Advocacy organization for ME/CFS patients and their carers in Europe
European ME Alliance
Registered:18 Nov 2024 14:35
Follow date:29 Oct 2025 15:46
Last post:7 Feb 2026
The European ME Alliance (EMEA) is a grouping of European organisations founded in 2008 by national patient organisations and charities across Europe, and dedicated to supporting patients suffering from Myalgic Encephalomyelitis (ME), also known as ME/CFS
Charlie Hillier
Registered:16 Nov 2024 09:36
Follow date:6 Jun 2025 13:23
Science, Molecular Biology, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Action for ME
Registered:27 Nov 2024 13:33
Follow date:6 Jun 2025 13:23
Last post:5 days ago
Providing support & holistic healthcare services to people of all ages affected by #MECFS. Charity number: 1036419 / SC040452
Fatigatio e.V. - Bundesverband ME/CFS
Registered:7 Nov 2023 11:21
Follow date:6 Jun 2025 13:23
Last post:6 Jan 2026
Wir unterstützen Menschen mit ME/CFS (Myalgische Enzephalomyelitis / Chronisches Fatigue Syndrom) und setzen uns seit 1993 für Versorgung, Forschung und Aufklärung ein.
Größte deutsche Patientenorganisation mit gut 3.000 Mitgliedern.
Michael Stingl
Registered:22 Aug 2023 10:22
Follow date:6 Jun 2025 13:23
Last post:3 days ago
Last like received:40 minutes ago
Facharzt für Neurologie
ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
Science for ME online forum
Registered:21 Aug 2024 17:06
Follow date:6 Jun 2025 13:23
Last post:8 hours ago
Last like received:12 hours ago
We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us.
This account is maintained on a part-time basis by patients.
Irish ME/CFS Association
Registered:3 Oct 2023 15:16
Follow date:6 Jun 2025 13:23
Last post:3 days ago
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association-for Information, Support & Research
NB: Posts are not advice
RCN 20100254
CHY 22039
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
Physios For ME
Registered:15 Oct 2023 09:11
Follow date:6 Jun 2025 13:23
Last post:1 hour ago
Last like received:1 hour ago
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Find out more at physiosforme.com
Dan Wyke
Registered:8 Oct 2023 17:55
Follow date:6 Jun 2025 13:22
Last post:3 days ago
Severe M.E. patient, person-centred counsellor (currently not practicing), recovering poet (Rack & Waterloo Press)
Janet Dafoe
Registered:25 Sep 2023 06:56
Follow date:6 Jun 2025 13:22
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
Whitney Dafoe
Registered:8 Feb 2024 00:10
Follow date:6 Jun 2025 13:22
Last post:25 Feb 2026
Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
#MEAction Network
Registered:3 Oct 2023 18:13
Follow date:6 Jun 2025 13:22
Last post:12 hours ago
Last like given:13 hours ago
Last like received:1 hour ago
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
Prof. Akiko Iwasaki
Registered:10 Nov 2024 16:28
Follow date:6 Jun 2025 13:22
We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines
Prof Danny Altmann
Registered:7 Nov 2024 07:10
Follow date:6 Jun 2025 13:22
Last post:2 days ago
Professor of Immunology, Imperial College London. Editor of OUP Oxford Open Immunology. Co-author - Penguin Long Covid Handbook. Discusses: Covid-19, Long Covid, T cells, immunogenetics and HLA, respiratory infection, science policy, arboviruses, C19th lit
ME/CFS News
Registered:9 Sep 2023 05:07
Follow date:6 Jun 2025 13:22
News, interesting information and commentary on ME/CFS.
Dt. Ges. für ME/CFS
Registered:1 Oct 2023 17:49
Follow date:6 Jun 2025 13:22
Last post:2 Mar 2026
Last like given:15 hours ago
ME/CFS ist eine schwere körperliche Erkrankung, die bisher kaum erforscht ist. Wir setzen uns für die Interessen der Erkrankten und mehr Forschung ein.
mecfs.de
WE&ME Foundation
Registered:18 Nov 2024 10:20
Follow date:6 Jun 2025 13:22
United in hope, we fund and support groundbreaking research to uncover answers and bring relief to those battling #MECFS and related illnesses. Together, we can change lives. 💙
Daniel Missailidis, PhD
Registered:22 Oct 2024 08:23
Follow date:6 Jun 2025 13:22
Last post:10 Feb 2026
Researching the cell biology of ME/CFS since 2016, now also Long COVID and PD. Papers: https://scholars.latrobe.edu.a...
Chris Ponting
Registered:10 Sep 2023 15:09
Follow date:6 Jun 2025 13:22
Last post:7 Feb 2026
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
Audrey Ryback
Registered:29 Dec 2024 20:41
Follow date:6 Jun 2025 13:18
Last post:4 Feb 2026
ME researcher at the University of Edinburgh.
Trude Schei
Registered:2 Sep 2023 17:16
Follow date:31 May 2025 16:38
ME patient advocate, architect by training
Dom
Registered:12 Nov 2024 20:44
Follow date:31 May 2025 16:38
Energetically compromised #pwME and patient advocate (when able) · Research scientist by trade · Interested in how we live · Open-minded but generally sceptical
https://domsalisbury.github.io
Simon McGrath
Registered:11 Oct 2023 20:21
Follow date:31 May 2025 16:38
Last post:2 days ago
Last like given:14 hours ago
I occasionally try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
Naomi Whittingham
Registered:11 Nov 2024 08:41
Follow date:31 May 2025 16:38
Writing is my voice from a hidden world. Published in The Daily Telegraph and Open Democracy. Now focusing on my own website.
www.alifehidden.com
Yann (ME/LC)
Registered:17 May 2024 18:58
Follow date:31 May 2025 16:38
Last post:18 hours ago
Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak.
I care.
Ⓐ💚, (FR/DE/EN, but posts in english)
Clinging onto the ledge above the abyss.
Cyrus
Registered:11 Oct 2023 09:37
Follow date:31 May 2025 16:38
Energetically compromised (bedridden) by severe #MECFS. All systems operating at minimum capacity & overloaded. In a previous life: comp sci x math, powerlifting. #LongCovid ally.
marydimmock.bsky.social
Registered:11 Oct 2023 01:42
Follow date:31 May 2025 16:38
Last post:13 Feb 2026
US ME patient advocate. Mother of a son and his wife who have ME and Long COVID. My other focus is on US politics and what's coming
Wilhelmina Jenkins
Registered:6 Nov 2024 22:35
Follow date:31 May 2025 16:38
Last post:13 hours ago
Last like given:10 hours ago
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
Robert Saunders (aka McMullen)
Registered:11 Nov 2024 19:03
Follow date:31 May 2025 16:38
Last post:26 Feb 2026
Last like given:32 minutes ago
Author of "stranger and stranger”, letter writer, advocate and fundraiser for biomedical ME/CFS research.
Dr. Daniel Loy
Registered:7 Oct 2023 13:39
Follow date:31 May 2025 16:38
Last post:3 days ago
Adam
Registered:1 Oct 2023 22:58
Follow date:31 May 2025 16:38
Last post:2 hours ago
Last like received:50 minutes ago
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbatte...
Tilman Andris
Registered:4 Oct 2023 14:39
Follow date:31 May 2025 16:38
Last post:17 Dec 2025
Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
Trish Davis
Registered:2 Oct 2023 18:19
Follow date:31 May 2025 16:38
Last post:10 Feb 2026
Retired maths teacher. ME/CFS 35 years. Volunteer staff member on Science for ME international forum, www.s4me.info
Anil van der Zee
Registered:28 Aug 2023 20:41
Follow date:31 May 2025 16:38
Last post:21 Feb 2026
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Dr. Sabine Hermisson 🦋
Registered:20 Aug 2023 22:00
Follow date:31 May 2025 16:38
Last post:2 hours ago
Last like given:13 minutes ago
Last like received:4 minutes ago
PD Dr. (religion, empirical education research)
mother of Mila who suffers from very severe ME/CFS (Bell 0)
https://milaandmecfs.files.wor...
Vienna, Austria
#CleanAir
Tom Kindlon
Registered:29 Sep 2023 13:54
Follow date:31 May 2025 16:38
Last post:8 hours ago
Last like given:9 hours ago
Last like received:4 minutes ago
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 37 years, severe ME 31 years.
@IrishMECFSAssoc trustee 28 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_...
David Davies-Payne
Registered:10 Oct 2023 07:16
Follow date:31 May 2025 16:38
Last post:25 Feb 2026
Last like given:6 hours ago
Paediatric Radiologist, Aotearoa New Zealand
Following more immunologists than radiologists
#MECFS #LongCOVID and a bit of #MacDev #iOSDev
he/him
https://ddp.nz | https://dysimmune.nz
ME/CFS Science
Registered:2 Oct 2023 15:31
Follow date:31 May 2025 16:38
Last post:8 minutes ago
Last like given:16 hours ago
Last like received:7 minutes ago
In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Formerly known as ME/CFS Skeptic.
https://mecfsscience.org/
Gary Stevenson
Registered:29 Jan 2024 10:05
Follow date:31 May 2025 16:32
Last post:16 Jan 2026
Last like received:29 minutes ago
Inequality Economist, former trader and author of The Trading Game. Other Economists make predictions, but my ones are actually right.
https://linktr.ee/garysecon
Ror Preston
Registered:14 Nov 2024 12:57
Follow date:9 May 2025 10:58
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙
#MECFS #LongCovid #IACC #PAIS
📍 https://crunchme.org/
Bluesky
Registered:12 Apr 2023 04:53
Follow date:9 May 2025 10:58
Last post:1 day ago
Last like received:1 minute ago
official Bluesky account (check username👆)
Bugs, feature requests, feedback: support@bsky.app