×
You are not logged in
Bluesky Follows
Lillian Isabella
Follows by @lillianisabella.com
Shuishan (Susan) Hu
Registered:10 Jun 2025 17:48
Follow date:29 Dec 2025 18:05
PKU adult ~ library enthusiast ~ master bookworm ~ I write because poetry is cheaper than therapy
Kim Berrios Lin
Registered:5 Feb 2025 16:36
Follow date:26 Apr 2025 00:15
Actor, Writer, Mom, Hilarious (to 6 year olds) … in pursuit of a life uninterrupted.
Sarah Seeds
Registered:16 Nov 2024 13:25
Follow date:25 Apr 2025 02:24
Actor. Writer. Creator. 🎬✨️🙏
Little & fierce.
James
Registered:6 Oct 2023 08:49
Follow date:24 Apr 2025 22:18
Join a bleeding-heart liberal and compulsive speculator rambling about saving the world with win-win games at nonzerosum.games!
elisabe.bsky.social
Registered:1 Nov 2023 11:38
Follow date:24 Apr 2025 22:17
Wheelchair user into Disability RightsLikes wildlife
Jamie Fraser, MD, PhD
Registered:15 Sep 2023 14:19
Follow date:24 Apr 2025 21:06
Clinical-Translational Physician-Scientist 🧫🐭🔬🧬🧠 MSTP trained, Fmr NIH fellow in #MedicalGenetics
Researching #Rare Disease, #Neuroscience
#LCC #LabruneSyndrome
#MPAN #Leukodystrophy
#WomenInSTEM #WomenInMedicine
Likes/Posts ≠ Medical Advice
International PKU Day
Registered:11 Jan 2025 14:57
Follow date:8 Feb 2025 23:59
International PKU Day was established and is led by the E.S.PKU to celebrate the legacy of Horst Bickel and Robert Guthrie as well as to raise awareness of Phenylketonuria.
thomasapb.bsky.social
Registered:2 Feb 2025 09:43
Follow date:8 Feb 2025 23:59
Duncan Noble-Nesbitt
Registered:23 Jan 2025 22:29
Follow date:8 Feb 2025 23:59
Specialist Nurse, tenor, travel loving, new experience, answer seeking type of guy. Lifelong PKU experience and on treatment #PKU #RareDisease Own views shared
Kevin Alexander
Registered:23 Jan 2025 19:52
Follow date:8 Feb 2025 23:59
🧬 Adult with Phenylketonuria (PKU)
🎥 Storyteller
📔Writer
🎸 Musician
Caoimhín
Registered:24 Nov 2024 08:58
Follow date:8 Feb 2025 23:59
[bridged from https://mastodon.online/@caoim... on the fediverse by https://fed.brid.gy/ ]
E.S.PKU
Registered:20 Nov 2024 19:04
Follow date:8 Feb 2025 23:59
E.S.PKU - European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria in the umbrella organization of about 41 national and regional associations from 31 countries established by parents and/or patients.
jescaerin.bsky.social
Registered:13 Nov 2024 18:01
Follow date:8 Feb 2025 23:59
Tricia Rutherford
Registered:13 Nov 2024 15:34
Follow date:8 Feb 2025 23:59
Professional interest in nutrition in rare disease. Very amateur interest in music and sport !
James Barham
Registered:14 Oct 2023 20:32
Follow date:8 Feb 2025 23:59
Dadding, nursing, PKUing. House servant to the child and @emmavardy2.bsky.social
Sharon Bee
Registered:18 Aug 2024 22:21
Follow date:8 Feb 2025 23:59
Brexit pushed Uk migrant navigating life in Spain. Mum to two phenomenal kids living with the genetic metabolic condition PKU.
https://www.researchgate.net/p...
Bernadette Sheehan Gilroy
Registered:20 Nov 2024 09:02
Follow date:8 Feb 2025 23:59
Lecturer Researcher Advocate
#PKU #LowProtein #BrainHealth #RareDisease
"Ní neart go cur le chéile"
The views and opinions expressed here are solely my own
Małgorzata Henek
Registered:13 Nov 2024 10:38
Follow date:8 Feb 2025 23:59
Board member of European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria, social services specialist, patient advocate. ♥️: 📖🚗✈️🎶📺
Mark Maguire
Registered:7 Dec 2023 16:15
Follow date:8 Feb 2025 23:59
Works #museum #education. Here for the #art, #comics, #SciFi, #news | Photos mine or otherwise credited. Followers with bio, activity, etc. more likely to become mutuals | ☘️ #SpeirGorm / #SpéirGhorm | 🐘 @MarkMaguire@mastodon.ie | 🧵 @markbmaguire
Paul D McKellar
Registered:18 Nov 2024 16:24
Follow date:8 Feb 2025 23:59
Clair W
Registered:15 Nov 2024 14:55
Follow date:8 Feb 2025 23:59
PKU ADHD Mother to my bb g & lil black cat, xbox player, crotchet hooker, ginger and expert on ice cream.
Emma Vardy
Registered:24 Sep 2023 20:20
Follow date:8 Feb 2025 23:59
Physician. Honorary Professor of Geriatric Medicine. Delirium. Dementia. Quality improvement. Book lover. Northerner. Mum to daughter with PKU.
Soheb
Registered:11 Nov 2024 09:49
Follow date:8 Feb 2025 23:58
Wrangles code and dodges protein for a living (PKU).
Jennifer J Brown
Registered:22 Nov 2024 01:12
Follow date:8 Feb 2025 23:51
#Author, #publichealth advocate, #genetics PhD.
Creatively driven & scientifically inspired, Mom of 2 with #PKU.
Latest book: When the Baby Is Not OK: Hopes & Genes
https://jjbrownauthor.com/
Bluesky
Registered:12 Apr 2023 04:53
Follow date:8 Feb 2025 23:49
official Bluesky account (check username👆)
Bugs, feature requests, feedback: support@bsky.app