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Bluesky Follows
Millions Missing France
Follows by @millionsmissingfr.bsky.social
ali-en-jachere.bsky.social
Registered:12 Feb 2025 11:59
Follow date:23 Jul 2025 06:55
Mediatrice scientifique, actuellement en prospection de projets de vie compatibles avec une em/sfc post covid (covid long)
Kate's Health Log
Registered:5 Dec 2024 18:31
Follow date:23 Jul 2025 06:53
A "director's cut" of @kateviolette.com 's medical journey: not just what treatments they're trying but why, and how they make medical decisions generally. Also various educational bits!
📋 Lyme (+ bartonella & babesia), MCAS, ME/CFS, and mold toxicity
Anna Chapiron
Registered:16 Oct 2023 10:00
Follow date:23 Jul 2025 06:52
🐈😼 in that order.
Ici ça balance entre légèreté et lourdinguerie.
Je fais des fôtes (je vois mal) et des fotos beaucoup (j'essaie). Non consentante quand covid m'a baisée et m'a laissé SAMA et MECFS.
Pas de alt sur tes images, un vent.
Virages à gauche.
Nantigone
Registered:29 Oct 2023 11:04
Follow date:23 Jul 2025 06:52
▪️Insoumise depuis toujours.
▪️Covid Long, EM and Co depuis juillet 2022.
🔺En plus de l'engagement citoyen, j'aime le silence, la #poésie et la #photographie 📷
〰️ Ici c'est du total respect 〰️
#ApresJ20 - Association Covid Long France
Registered:25 Sep 2023 11:38
Follow date:23 Jul 2025 06:49
Compte officiel #ApresJ20 Association Covid Long France visant à favoriser la Reconnaissance, les Soins, la Recherche et la Communication sur le #LongCovid
PrO2 Health - Inspiring Wellness
Registered:4 Dec 2024 12:28
Follow date:14 Jan 2025 20:00
Telehealth enabled respiratory muscle trainer with 20+ years of research demonstrating performance and health improvements. #IMT #RMT #COPD #CHF #LongCovid #MECFS
https://www.pro2health.com
https://www.pro2health.com/res...
Maude Jarry
Registered:10 Jan 2025 14:13
Follow date:12 Jan 2025 08:29
Écrivaine aux Éditions de Ta Mère
La mère des larves🪱 (avril 2025)
Si j’étais un motel 🏩 (2019)
maudejarry.com
Fabian Fritz
Registered:14 Nov 2024 17:07
Follow date:11 Jan 2025 07:11
Dr. phil.; former professor; #Sozialpädagogik #Demokratiebildung #KinderundJugendarbeit #socialwork #Antifaschist #fcsp 🤎🤍❤️ Check: emptystands.me
Homepage: https://www.bildung.uni-siegen...
Bateman Horne Center
Registered:6 Jan 2025 19:08
Follow date:11 Jan 2025 07:10
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
Aurore
Registered:3 Oct 2023 14:58
Follow date:9 Jan 2025 09:43
Patients with Power
Registered:17 Aug 2023 14:32
Follow date:24 Dec 2024 06:34
Patient-scientist fighting for medicine based on SCIENCE; NOT BIAS. Taking a stand against patient abuse, neglect & exploitation. 🦾 Analysing the behaviour of doctors 🧐
Struan Grant
Registered:13 Dec 2023 18:36
Follow date:23 Dec 2024 06:21
Professor of Genetics and Pediatrics, UPenn/CHOP🧬. https://orcid.org/0000-0003-20... Views my own. 🏴🇺🇸
Atanas G. Atanasov
Registered:13 Dec 2024 17:26
Follow date:23 Dec 2024 06:20
Lead Editor: #CRBIOTECH & #ExplorDHT | Chair of Pharmacology at DPU | Prof of IGAB-PAS | Leader: #DHPSP & #INPST | Author of #HealthHacksThatWork
🔗Web: https://digitalpatientsafety.c...
El Zorro, der maskierte Reiter
Registered:21 Sep 2023 21:23
Follow date:19 Dec 2024 13:17
Antifaschismus, Wissenschaften, Politik, Literatur, Musik, Film, Gaming.
#ME/CFS #MillionsMissing #MEAwareness #TeamWissenschaft #TeamVorsicht
#FCKNZS #noAfD #wirsindmehr
#Games
Ravi Veriah Jacques
Registered:18 Oct 2023 12:40
Follow date:18 Dec 2024 17:23
Post-Covid ME/CFS since March 2021. Before then, a life I loved.
Stanford History | 2021 Schwarzman Scholar
Lisa Tschudi
Registered:14 Nov 2024 19:53
Follow date:18 Dec 2024 07:17
Family manager, caregiver, data analyst, artist and co-owner of Two Squared Media Productions, llc.
ME RESPITE
Registered:12 Dec 2024 19:48
Follow date:16 Dec 2024 19:48
ME RESPITE is a registered New Zealand Charity providing practical support to those with Myalgic Encephalomyelitis (ME) Chronic Fatigue Syndrome (CFS) and related illnesses.
Sue
Registered:6 Dec 2023 02:59
Follow date:15 Dec 2024 05:59
Mostly posting about Long Covid
UniteToFight
Registered:18 Nov 2024 08:33
Follow date:12 Dec 2024 15:21
LongCovid & ME/CFS conference project. We’re a small group of affected people living with LC & ME/CFS, alongside dedicated supporters.
#UniteToFight2024
www.youtube.com/@unitetofight2...
Unknown Etiology
Registered:16 Jan 2024 23:06
Follow date:11 Dec 2024 08:38
fund research and clinical trials for infection associated chronic illnesses now, and furthermore provide clean energy-powered hotel cold on demand for free.
Mask Bloc Paris-Banlieues
Registered:20 Sep 2023 13:13
Follow date:11 Dec 2024 04:44
Collectif qui distribue des masques respiratoires (FFP2) gratuits en IDF🗼
Besoin de masques ? De conseils ? Envie d'aider ? Contacte-nous ! 💌 maskblocparisbanlieues@riseup.net
#AutodéfenseSanitaire
#Antivalidisme
#MaskUp
#CovidIsNotOver
#CovidIsAirborne
valebodi.bsky.social
Registered:7 Oct 2023 02:21
Follow date:9 Dec 2024 04:21
Surviving MyalgicE, AAG & CVID to tell the story, patient & advocate w/ a JD. Into MEdical, Social & Climate Justice & Arts. Human neutrino/ PwME = ME apolide/ Gnarled pacer. MEssLand Worldwide https://www.tandfonline.com/do...
evapopo
Registered:22 Nov 2023 16:51
Follow date:8 Dec 2024 10:18
Intrusion de roches magmatiques au sein de la croûte terrestre
Autodéfense sanitaire et Féminisme @leplanning
@evapopopo@eldritch.cafe
CrunchME
Registered:21 Nov 2024 11:44
Follow date:7 Dec 2024 13:26
CrunchME is a patient-led organisation, creating the evidence and insight base needed to crunch infection-associated chronic conditions (IACCs), including #MECFS and #LongCovid.
📍 https://crunchme.org/
David Tuller
Registered:6 Nov 2023 04:07
Follow date:7 Dec 2024 13:26
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
Oonagh Cousins
Registered:10 Dec 2023 19:40
Follow date:7 Dec 2024 13:26
PolyBio Research Foundation
Registered:17 Nov 2024 23:01
Follow date:7 Dec 2024 13:26
501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
Rene Sugar
Registered:9 Nov 2024 18:07
Follow date:7 Dec 2024 13:26
Maya Lindemann
Registered:1 Oct 2023 18:43
Follow date:7 Dec 2024 13:25
RWJF ClinicalScholars Alum, School Nurse, Scientific Diver/ocean lover bedridden by severe #LongCovid 3/2020 & #MECFS, #POTS, #MCAS #hEDS #Chiari. #healthequity
Lisa Gralinski
Registered:22 Aug 2023 19:21
Follow date:7 Dec 2024 13:25
Virologist at UNC, travel and food lover.
Raven Baxter, Ph.D.
Registered:28 Apr 2023 12:42
Follow date:7 Dec 2024 13:25
Molecular biologist and science educator putting science in your hands as President of @TheScienceHaven. All views are my own. Also known as Dr. Raven the Science Maven :)
Julia MV
Registered:10 Oct 2023 17:58
Follow date:7 Dec 2024 13:25
Long COVID patient-researcher
@ Scripps Research & Patient-Led Research Collaborative
Michael Sieverts
Registered:8 Sep 2023 20:58
Follow date:7 Dec 2024 13:24
DMV native. COVID long hauler. Patient-Led Research Collaborative.
Shelley
Registered:1 Oct 2023 05:40
Follow date:7 Dec 2024 13:24
Reformed journo/editor, now working in health comms. Fighter of injustice in all its forms. Advocate for better research & support for ppl w uninvited friends POTS, ME/CFS, MCAS, LC, EDS, SjD, AnkSp plus other misunderstood AI conditions.
ME/CFS San Diego
Registered:2 Oct 2023 00:33
Follow date:7 Dec 2024 13:24
ME/CFS San Diego, a 501c3 public charity, is working locally to raise awareness of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), to help educate healthcare workers and researchers, to increase access and support for ME/CFS patients.
Liz Worthey
Registered:24 Aug 2023 04:29
Follow date:7 Dec 2024 13:24
#AssociateProf #CompBio #Omics #WomenInScience #LGBTQ+Ally #Scottish #PrecisionMedicine #HealthCare #MDx #ME/CFS #RareDisease #Informatics #SciFiNerd #LongCovidAffected
sites.uab.edu/cgds/ she/her
melindasays_AbolishIce
Registered:27 Aug 2023 19:56
Follow date:7 Dec 2024 13:24
My body has given up but I haven't...
Bed-tethered disabled Advocate on hiatus (but RESISTing) due to severe ME & LC & comorbids. Co-founder #MEAction Maryland.
Orioles/Ravens/Caps fan. She/her
Dr. Markus Fraczek
Registered:1 Sep 2023 17:02
Follow date:7 Dec 2024 13:24
• Scientist ‖ PhD mathematical physics (not MD) ‖ Dr. rer. nat.
• Interests: Medicine ‖ History ‖ Global Politics
• #MECFS ➡️ http://mecfs.de/was-ist-me
• EN ‖ PL ‖ DE
Janna Moen, PhD
Registered:29 Sep 2023 17:13
Follow date:7 Dec 2024 13:24
Postdoctoral scientist studying the neurobiology of #longCOVID in the Iwasaki lab @ Yale. Patient, scientist, advocate. | ♿🏳️🌈 | she/her
My long COVID research newsletter: lcbreakdown.substack.com
Fi Lowenstein
Registered:23 May 2023 16:44
Follow date:7 Dec 2024 13:24
writer + journalist covering health justice, wellness culture, LGBTQ+ stuff + more...
https://www.fionalowenstein.co...
The Long COVID Survival Guide:
https://theexperimentpublishin...
they/them
Monica Verduzco-Gutierrez
Registered:28 Jun 2023 13:56
Follow date:7 Dec 2024 13:23
betsy ladyzhets 😷
Registered:8 May 2023 16:07
Follow date:7 Dec 2024 13:23
editor/co-founder @thesicktimes.org | journalist covering Long COVID & related crises | she/her/🏳️🌈
email: betsy@thesicktimes.org | signal: betsyladyzhets.25 | https://thesicktimes.org/
Miles W. Griffis
Registered:4 Jul 2023 00:53
Follow date:7 Dec 2024 13:23
Co-founder/editor @TheSickTimes.org
Columnist @HighCountryNews.org
miles@thesicktimes.org #LongCOVID
C.H. Romatowski
Registered:29 Sep 2023 01:48
Follow date:7 Dec 2024 13:22
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing.
ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
ThereForME
Registered:10 Nov 2024 19:57
Follow date:7 Dec 2024 13:22
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
Dr Jo Greer
Registered:5 Oct 2023 15:43
Follow date:7 Dec 2024 13:22
Mum, Carer, Educational Psychologist
www.theredtreeandME.com
Anna Holmes
Registered:23 Jul 2023 22:23
Follow date:7 Dec 2024 13:20
Author (The Ember of Elyssia Quartet, Fortune's Calling Trilogy, THE BRIDAL PARTY, THE PRINCE WITH SIX FACES). Dice roller. Disabled in the library. All opinions mine. All around nerd.
https://linktr.ee/annaholmeswr...
(She/they) ♿️🏳️🌈
mountsinainyc.bsky.social
Registered:24 Nov 2024 14:25
Follow date:7 Dec 2024 13:19
Mask Bloc Lyon
Registered:20 Nov 2024 12:47
Follow date:7 Dec 2024 13:16
Distribution gratuite de masques FFP2 à Lyon. #AutodéfenseSanitaire
Contact par messages privés ou mail à maskbloclyon@tuta.io
https://linktr.ee/maskbloclyon
Association Covid Long Enfants
Registered:6 Dec 2024 15:45
Follow date:7 Dec 2024 13:16
Association qui lutte pour la reconnaissance du Covid Long pédiatrique, la prise en charge des enfants, adolescents et jeunes adultes concernés, soutient les familles.