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Bluesky Follows
Shelley
Follows by @shellchat.bsky.social
Letícia Soares
Registered:28 Feb 2025 10:51
Follow date:22 Mar 2025 12:47
Co-lead & patient-researcher @patientled.bsky.social. Biologist, PhD. Brasileira.
LongCovidPharmD
Registered:4 Dec 2024 01:59
Follow date:22 Mar 2025 12:47
Pharmacist interested in Long COVID and ME/CFS research
Pro-mask, pro-clean air!
Substack: https://pharmd.substack.com/
Dr Rae Duncan
Registered:19 Aug 2024 19:41
Follow date:22 Mar 2025 12:47
Consultant Cardiologist, also treating and researching Long Covid. Long Covid Advisory Team @ WHN, #TeamClots, Medical Champion @ Long Covid Kids. Prevention is better than cure. Views my own and not medical advice x
Carmen Scheibenbogen
Registered:29 Oct 2023 16:33
Follow date:22 Mar 2025 12:47
Immunologist and ME/CFS researcher @Charité
https://cfc.charite.de/
Claudia ✨
Registered:28 May 2023 17:51
Follow date:22 Mar 2025 12:47
Now, more: Great value
Long COVID Physio
Registered:14 Nov 2024 07:30
Follow date:22 Mar 2025 12:47
#LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies
https://bio.site/longcovidphys...
Rivka Solomon
Registered:26 Nov 2024 12:56
Follow date:22 Mar 2025 12:47
• Advocate/Organizer: Immune-Associated and Infection-Associated Chronic Illnesses, ME/CFS, Long COVID, Lyme, disability and women
• Writer: Washington Post, Marie Claire magazine, NPR, Ms. magazine, Newsweek
• Playwright: Dozens of productions
Ilene Ruhoy MD PhD
Registered:7 Oct 2023 01:14
Follow date:22 Mar 2025 12:47
Neurologist and more. https://www.atria.org/doctors/...
David Kaufman
Registered:2 Dec 2024 00:08
Follow date:22 Mar 2025 12:47
Physician/Internist focused on complex illness including Long Covid, ME/CFS, dysautonomia/POTS, MCAS, connective tissue disorder, and of course SIBO/Leaky Gut.
And sadly, the ongoing coup.
Kat Boniface
Registered:10 Nov 2024 03:39
Follow date:22 Mar 2025 12:47
Riverside, CA
Equine History Collective
Renegade Research
https://katboniface.wordpress....
CrunchME
Registered:21 Nov 2024 11:44
Follow date:22 Mar 2025 12:47
CrunchME is a patient-led organisation, creating the evidence and insight base needed to crunch infection-associated chronic conditions (IACCs), including #MECFS and #LongCovid.
📍 https://crunchme.org/
Liz Burlingame
Registered:3 Oct 2023 20:10
Follow date:22 Mar 2025 12:47
Living with ME/CFS since 1991. Here for the long haul. I am one of the #MillionsMissing.
ThereForME
Registered:10 Nov 2024 19:57
Follow date:22 Mar 2025 12:46
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
David Tuller
Registered:6 Nov 2023 04:07
Follow date:22 Mar 2025 12:46
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
Oonagh Cousins
Registered:10 Dec 2023 19:40
Follow date:22 Mar 2025 12:46
PolyBio Research Foundation
Registered:17 Nov 2024 23:01
Follow date:22 Mar 2025 12:46
501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
Sickandtiredaus Jordan Crane
Registered:15 Nov 2024 11:52
Follow date:22 Mar 2025 12:46
Resia Pretorius
Registered:10 Nov 2024 21:58
Follow date:22 Mar 2025 12:46
Distinguished professor, Stellenbosch University and Honorary professor, University of Liverpool.
dSavannah
Registered:3 Oct 2023 18:29
Follow date:22 Mar 2025 12:46
~ Life stolen by MEcfs-hEDS-fibro-POTS-&c; FT sick since 12/2014
~ #LiveInBedButIAintDead
~ When brain & body behave: Chronic Illness Advocate
~ Discworldian, Browncoat
~🐱(x3)🐢💐🌻🌷📸📚🖼️
~ she / her ~ Love Is Love ❤️💚🧡💛🩵💙💜🤎🖤🩶🤍🩷
https://linktr.ee/thedsavannah
Rene Sugar
Registered:9 Nov 2024 18:07
Follow date:22 Mar 2025 12:46
Gina Assaf 🍉
Registered:14 Nov 2024 02:14
Follow date:22 Mar 2025 12:46
Participatory Design & Research/Strategy - Tech for Social & Global impact. Co-leading #longCovid @patientled research and Managing @obidigital
Meighan Stone
Registered:2 Oct 2023 14:05
Follow date:22 Mar 2025 12:46
Executive Director of Long COVID Campaign @lccampaign.bsky.social. Past: President Malala Fund, Senior Fellow Council on Foreign Relations & Harvard fellow. Single mom living with #LongCOVID #MECFS #POTS #MCAS one day at a time ♿
Karyn Bishof
Registered:12 Nov 2024 23:40
Follow date:22 Mar 2025 12:46
🔵 Founder & Pres. @C19LAP https://www.longhauler-advocac...
🔵 Pw/ #LongCOVID, #IACCS, #Disability
🔵 Fmr. Firefighter/Paramedic
🔵 Fmr. Educator, Coach, & Dir. of Athletics
🔵 B.S. (ex science & health promotion)
🔵 #StillCOVIDING #COVIDConscious #Mask
Prof. Akiko Iwasaki
Registered:10 Nov 2024 16:28
Follow date:22 Mar 2025 12:46
We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines
marydimmock.bsky.social
Registered:11 Oct 2023 01:42
Follow date:22 Mar 2025 12:46
US ME patient advocate. Mother of a son and his wife who have ME and Long COVID. My other focus is on US politics and what's coming
Prof Danny Altmann
Registered:7 Nov 2024 07:10
Follow date:22 Mar 2025 12:46
Professor of Immunology, Imperial College London. Editor of OUP Oxford Open Immunology. Co-author - Penguin Long Covid Handbook. Discusses: Covid-19, Long Covid, T cells, immunogenetics and HLA, respiratory infection, science policy, arboviruses, C19th lit
AMooney
Registered:9 Nov 2024 17:25
Follow date:22 Mar 2025 12:46
Occupational therapist, advocate, and caregiver dedicated to supporting individuals with chronic complex conditions. Offering therapeutic care for those affected by #MECFS, #LongCOVID, #POTS, #EDS, and related conditions.
Wilhelmina Jenkins
Registered:6 Nov 2024 22:35
Follow date:22 Mar 2025 12:46
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
Ashley Hultman
Registered:31 Oct 2024 08:41
Follow date:22 Mar 2025 12:46
#TeachMETreatME #hEDS #MyalgicEncephalomyelitis #MESpine #CCI #POTS #longCovid #AuDHD #endo • Capitol Hill, AFL-CIO, and AFT alum • She/her
@JohnVsJonVsME
Registered:21 Oct 2024 03:58
Follow date:22 Mar 2025 12:46
#JohnVsJonVsME campaign to get John Oliver or Jon Stewart to bring the awful history of #MyalgicEncephelomyelitis #GreatestMEdicalScandal to light
JohnVsJon.com
Raven Baxter, Ph.D.
Registered:28 Apr 2023 12:42
Follow date:22 Mar 2025 12:46
Molecular biologist and science educator putting science in your hands as President of @TheScienceHaven. All views are my own. Also known as Dr. Raven the Science Maven :)
Lila Guterman
Registered:7 May 2023 12:19
Follow date:22 Mar 2025 12:46
Science journalist with long covid. Former staff at Science Magazine, Science News, C&EN, Chronicle of Higher Education. Now full-time patient.
Frances Ryan
Registered:7 Oct 2023 19:07
Follow date:22 Mar 2025 12:45
Guardian columnist and journalist. Commentator of the Year 2024. Author of Who Wants Normal? and Crippled.
E: frances.ryan.freelance@guardian.co.uk
Riemerville
Registered:22 Apr 2023 17:16
Follow date:22 Mar 2025 12:45
Salty | #LongCovid,#POTS & #ME | Books, Music, Food, Art #ATXRE | Excuse my typos
We are living in a choose-your-own dystopian novel
v. ashley
Registered:28 Oct 2023 22:40
Follow date:22 Mar 2025 12:45
† doktora | research+policy | perpetually horizontal
ID’s: Brown skin woman w/ curly hair, wearing a brown tube top, smiles. Banner - Sepia picture of a couple getting married w/ family around them.
vashetc.com | restandmecfs.com | survivorsandallies.com
Millions Missing France
Registered:30 Sep 2023 21:50
Follow date:22 Mar 2025 12:45
Asso de patient·e·s. Pour la prise en charge de l'encéphalomyélite myalgique #EM en France et le développement de la recherche.
Entraide & soutien 🤝 www.millionsmissing.fr
🔴 Membre de World ME Alliance.
Shelley Jules
Registered:22 Sep 2023 02:40
Follow date:22 Mar 2025 12:45
MECFS from the long before times but not diagnosed for 23 years…LC since 2020 - interested in advancing patient led research (Renegade Research & Remission Biome) & all avenues that lead to effective treatments for everyone. She/her. Love is my language. 💖
Christina Steiger
Registered:2 Oct 2023 02:36
Follow date:22 Mar 2025 12:45
Assistant professor of economics on medical leave from Northeastern University; macroeconomics, growth and development. Severely ill with MCAS/POTS/EDS/ME. Catholic convert who loves the balance of faith and reason. Native Oregonian.
C Barrel
Registered:5 Oct 2023 17:48
Follow date:22 Mar 2025 12:45
I enjoy cats and bicycles. I much less enjoy my chronic illnesses. #pwME
Kayli Jamieson
Registered:1 Aug 2023 04:25
Follow date:22 Mar 2025 12:45
@wandering on Instagram ✍🏻
Disabled with Long Covid 48+ months
Long COVID Researcher @sfu-fhs.bsky.social
Master’s Student @sfucmns.bsky.social writing on biopolitics & Long COVID
kaylijamieson.notion.site/research
Rachel Riggs
Registered:20 Sep 2023 20:31
Follow date:22 Mar 2025 12:45
Author of IN GOOD HEALTH: Uncomplicated, Allergen-Aware Recipes For a Nourished Life
instagram.com/the.rachel.riggs
#EDS #MECFS #Food
#paleo #glutenfree #dairyfree
Anna Kerr
Registered:28 Sep 2023 10:29
Follow date:22 Mar 2025 12:45
ME patient, art appreciator, advocate, mother.
anneromatowski.bsky.social
Registered:19 Aug 2023 05:27
Follow date:22 Mar 2025 12:45
tinyurl.com/ARealCancer
Katie Klocksin, by the wayside
Registered:29 Sep 2023 01:35
Follow date:22 Mar 2025 12:45
One of the #MillionsMissing with #LongCovid #MECFS JohnVsJon.com // Once a radio and podcast producer, always a Transom alum
😷 Long covid is common 😷
Nele
Registered:27 Sep 2023 14:31
Follow date:22 Mar 2025 12:45
I'll "tweet" here about the things I don't like if the other app goes down
Julia MV
Registered:10 Oct 2023 17:58
Follow date:22 Mar 2025 12:45
Long COVID patient-researcher
@ Scripps Research & Patient-Led Research Collaborative
Michael Sieverts
Registered:8 Sep 2023 20:58
Follow date:22 Mar 2025 12:45
DMV native. COVID long hauler. Patient-Led Research Collaborative.
Liz Worthey
Registered:24 Aug 2023 04:29
Follow date:22 Mar 2025 12:45
#AssociateProf #CompBio #Omics #WomenInScience #LGBTQ+Ally #Scottish #PrecisionMedicine #HealthCare #MDx #ME/CFS #RareDisease #Informatics #SciFiNerd #LongCovidAffected
sites.uab.edu/cgds/ she/her
Josh
Registered:14 Jun 2023 16:04
Follow date:22 Mar 2025 12:45
Long Covid, ME/CFS, POTS…. For now
Workwell Foundation
Registered:3 Nov 2023 19:53
Follow date:22 Mar 2025 12:45
#Nonprofit clinical #research providing 2-day #CPET #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses. workwellfoundation.org