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Bluesky Follows
Sten Helmfrid
Follows by @stenhelmfrid.bsky.social
Steve Chalmers
Registered:6 Oct 2023 03:16
Follow date:17 Nov 2024 12:29
Last post:6 Feb 2026
Retired person, was in tech industry for 37 years
Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s
Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
Michael Stingl
Registered:22 Aug 2023 10:22
Follow date:17 Nov 2024 12:29
Last post:4 hours ago
Last like given:8 hours ago
Last like received:24 minutes ago
Facharzt für Neurologie
ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
Dr. Melissa Geraghty, Psy.D.
Registered:9 Nov 2024 20:31
Follow date:14 Nov 2024 07:53
🦋 CEO of Phoenix Rising with Dr. G
🦋 Clinical Health Psychologist (Complex Medical, Rare Disease, Eating Disorders)
🦋 Medical Gaslighting Sensitivity Trainer
🦋 Keynote Speaker
🦋 #IamRare 🦓 ♿
www.phoenixrisingwithdrg.com
Chronic Illness Humor
Registered:17 Mar 2024 13:20
Follow date:14 Nov 2024 07:53
Last post:13 minutes ago
Last like received:16 seconds ago
Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for while. https://chronicillnesstees.ets...
https://mybodyistryingtokillme...
https://www.redbubble.com/peop...
#chronicillness
UK Charity Invest in ME Research
Registered:23 Dec 2023 15:42
Follow date:14 Nov 2024 07:53
Last post:4 days ago
Last like given:8 hours ago
An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe
(charity nr. 1153730)
www.investinme.org
Science for ME online forum
Registered:21 Aug 2024 17:06
Follow date:14 Nov 2024 07:52
Last post:2 days ago
Last like received:1 day ago
We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us.
This account is maintained on a part-time basis by patients.
Adam
Registered:1 Oct 2023 22:58
Follow date:14 Nov 2024 07:52
Last post:8 hours ago
Last like received:2 hours ago
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbatte...
Whitney Dafoe
Registered:8 Feb 2024 00:10
Follow date:14 Nov 2024 07:52
Last post:5 hours ago
Last like received:6 minutes ago
Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
Bluesky Support
Registered:26 Jan 2023 20:35
Follow date:14 Nov 2024 07:51
Submit bug reports, feature requests, and feedback with the in-app form in your left side menu (mobile) or right column (desktop), or email us at support@bsky.app.
George Monbiot
Registered:26 Jul 2023 05:30
Follow date:14 Nov 2024 07:29
Last post:1 hour ago
Last like given:21 minutes ago
Last like received:27 seconds ago
Ungainly on land
Katrin Friberg
Registered:4 Oct 2023 17:45
Follow date:11 Dec 2023 06:51
Last post:1 day ago
Last like given:2 days ago
Last like received:9 hours ago
Emigrerat från Twitter/X där jag bott sedan 2011.
Är mestadels hemmabunden pga ME/CFS och EDS. Sitter ibland i rullstol, ibland inte.
Fru, mamma och matte som bor i Hedemora.
SusannaD
Registered:6 Oct 2023 08:22
Follow date:28 Nov 2023 16:14
Miljöinriktad agronom med samhällsintresse, gård, gitarr o pensel. Efter ME-skov 2015 lever jag så halvdant det går med 20%-igt energikonto, hjärndimma, POTS mm.
En av de #MillionsMissing
Mer biomedicinsk ME-forskning och vård!
Lucibee
Registered:20 Sep 2023 12:00
Follow date:24 Nov 2023 10:50
Last post:3 hours ago
Last like given:2 hours ago
Last like received:37 minutes ago
Science defender and eco-worrier.
(she/her)
No DMs please (can't access).
Treaty of Westphalia
Registered:3 Oct 2023 19:36
Follow date:24 Nov 2023 10:50
Last post:4 days ago
Academic background: Comparative Literature (European 19th c)
Bluesky focus: LC/ME, Russian invasion into Ukraine, Arts/Culture
David Tuller
Registered:6 Nov 2023 04:07
Follow date:24 Nov 2023 10:49
Last post:5 hours ago
Last like received:52 minutes ago
Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
KarenG
Registered:9 Oct 2023 16:24
Follow date:6 Nov 2023 16:00
Last post:4 Mar 2026
Mum & carer of Sophia, bedbound with very severe ME. Constantly searching for answers and a way out of the abyss. #lymedisease #severeME #POTS #chronicpain #allodynia #vertigo
Cyrus
Registered:11 Oct 2023 09:37
Follow date:5 Nov 2023 19:09
Energetically compromised (bedridden) by severe #MECFS. All systems operating at minimum capacity & overloaded. In a previous life: comp sci x math, powerlifting. #LongCovid ally.
Anil van der Zee
Registered:28 Aug 2023 20:41
Follow date:5 Nov 2023 19:08
Last post:21 Feb 2026
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Chris Ponting
Registered:10 Sep 2023 15:09
Follow date:5 Nov 2023 19:08
Last post:7 Feb 2026
Last like given:9 hours ago
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
Jonas R. Kunst
Registered:23 Sep 2023 09:54
Follow date:5 Nov 2023 19:08
Last post:23 Feb 2026
Professor of Communication and Psychology at BI Norwegian Business School and the University of Oslo
Past Yale, Harvard, UiB. Editor-in-Chief at Advances.in
Father. Views are my own.
Janet Dafoe
Registered:25 Sep 2023 06:56
Follow date:5 Nov 2023 19:08
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
ME/CFS News
Registered:9 Sep 2023 05:07
Follow date:5 Nov 2023 19:08
News, interesting information and commentary on ME/CFS.
Nina Steinkopf
Registered:7 Aug 2023 20:34
Follow date:5 Nov 2023 19:08
Last post:1 day ago
Last like given:5 hours ago
Last like received:5 hours ago
Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and writer. www.melivet.com
Anti-genocide.
Shelley
Registered:1 Oct 2023 05:40
Follow date:5 Nov 2023 19:07
Reformed journo/editor, now working in health comms. Fighter of injustice in all its forms. Advocate for better research & support for ppl w uninvited friends POTS, ME/CFS, MCAS, LC, EDS, SjD, AnkSp plus other misunderstood AI conditions.
It's ME(Jaime)
Registered:3 Oct 2023 17:38
Follow date:5 Nov 2023 19:07
Last post:1 hour ago
Last like given:1 hour ago
Last like received:6 minutes ago
Scientific Director, #MEAction
Stanford Med
Université de Montréal
TIME100 Health
#ME, #EDS, #POTS, #LongCOVID
Views my own
#MEAction Network
Registered:3 Oct 2023 18:13
Follow date:5 Nov 2023 19:07
Last post:3 hours ago
Last like given:57 minutes ago
Last like received:5 minutes ago
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
Irish ME/CFS Association
Registered:3 Oct 2023 15:16
Follow date:5 Nov 2023 19:07
Last post:5 days ago
Last like given:7 hours ago
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association-for Information, Support & Research
NB: Posts are not advice
RCN 20100254
CHY 22039
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
European ME Coalition (EMEC)
Registered:3 Oct 2023 15:03
Follow date:5 Nov 2023 19:07
Last post:22 Dec 2025
Advocacy organization for ME/CFS patients and their carers in Europe
Ruth Lampard
Registered:14 Sep 2023 18:53
Follow date:5 Nov 2023 19:07
Last post:12 hours ago
Last like given:10 hours ago
Last like received:2 hours ago
Looking out for blessings: in wildlife, nature, & kindness. Fan of rewilding, life too. Slow Pilgrim, priest.
Usually moderate to mild in views, occasionally sharp. No DMs, will block
Open Medicine Foundation (OMF)
Registered:4 Oct 2023 17:27
Follow date:5 Nov 2023 19:07
Last post:5 hours ago
Last like received:4 hours ago
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
Dx Revision Watch
Registered:9 Oct 2023 07:08
Follow date:5 Nov 2023 19:06
Formerly monitoring/reporting on developments with ICD-11, ICD-10-CM, DSM-5, SNOMED CT & other classification and terminology systems
Simon McGrath
Registered:11 Oct 2023 20:21
Follow date:5 Nov 2023 19:06
Last post:4 hours ago
Last like given:4 hours ago
Last like received:3 hours ago
I occasionally try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
#MillionsMissing Sweden
Registered:1 Oct 2023 17:57
Follow date:5 Nov 2023 19:06
#MillionsMissing is a global campaign for ME health equality!
https://meaction.net
#MillionsMissingSweden #MEAction #MECFS #pwME #svmed #MEAwarenessHour
ME/CFS San Diego
Registered:2 Oct 2023 00:33
Follow date:5 Nov 2023 19:06
Last post:27 minutes ago
Last like received:28 minutes ago
ME/CFS San Diego, a 501c3 public charity, is working locally to raise awareness of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), to help educate healthcare workers and researchers, to increase access and support for ME/CFS patients.
ez
Registered:30 Sep 2023 20:14
Follow date:5 Nov 2023 19:06
ME/CFS, science, history of ideas, disability, photography, film, board games, curiousity, history of medicine. Location: Sweden
#pwME #MECFS #NEISvoid #ChronicIllness
Came here from: https://twitter.com/ezchili
John Peters
Registered:14 Oct 2023 14:42
Follow date:5 Nov 2023 19:06
Last post:21 seconds ago
Last like given:15 seconds ago
Last like received:2 hours ago
Unbeliever (political & religious), Wales rugby, #c4news, porridge, tea, #MEcfs
'Obvious but wrong'
Also JTJ on the other place
https://johnthejack.com
Physios For ME
Registered:15 Oct 2023 09:11
Follow date:5 Nov 2023 19:06
Last post:1 day ago
Last like received:9 hours ago
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Find out more at physiosforme.com
Trish Davis
Registered:2 Oct 2023 18:19
Follow date:5 Nov 2023 19:05
Last post:10 Feb 2026
Retired maths teacher. ME/CFS 35 years. Volunteer staff member on Science for ME international forum, www.s4me.info
Dan Wyke
Registered:8 Oct 2023 17:55
Follow date:5 Nov 2023 18:39
Last post:4 days ago
Severe M.E. patient, person-centred counsellor (currently not practicing), recovering poet (Rack & Waterloo Press)
Brian Hughes
Registered:13 Oct 2023 10:37
Follow date:4 Nov 2023 21:03
Last post:2 Mar 2026
Last like received:2 hours ago
Prof Psych • Writer • Galway • he/him
New book 'Psychology's Quiet Conservatism': https://link.springer.com/book...
Blog: https://thesciencebit.net/
Bio: https://brianmhughes.com/
📷 https://www.photoblogism.net
Julie Rehmeyer
Registered:3 Jul 2023 17:27
Follow date:4 Nov 2023 21:03
Last post:10 Dec 2025
Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
Tom Kindlon
Registered:29 Sep 2023 13:54
Follow date:4 Nov 2023 21:03
Last post:37 minutes ago
Last like given:2 hours ago
Last like received:11 minutes ago
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 37 years, severe ME 31 years.
@IrishMECFSAssoc trustee 28 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_...
ME/CFS Science
Registered:2 Oct 2023 15:31
Follow date:4 Nov 2023 21:03
Last post:6 hours ago
Last like given:3 hours ago
Last like received:59 minutes ago
In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Formerly known as ME/CFS Skeptic.
https://mecfsscience.org/